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Table 5 Late-onset GM2 gangliosidosis-related adaptations

From: Patient and caregiver perspectives on burden of disease manifestations in late-onset Tay-Sachs and Sandhoff diseases

Concept

n (%)b

Walker

12 (60%)

Wheelchair

11 (55%)

Adaptation to home

8 (40%)

Cane

7 (35%)

Physical therapy

6 (30%)

Hyperextension of legs

3 (15%)

Speech therapy

5 (25%)

Service dog

4 (20%)

Changed car

3 (15%)

Brace

3 (15%)

Chairlift

3 (15%)

Other walking support

3 (15%)

Aqua therapy

2 (10%)

Scooter

2 (10%)

Swallowing therapy

1 (5%)

Occupational therapy

1 (5%)

Therapist

1 (5%)