Table 1 Demographics of patients participating in focus group and individual interviews
Late-onset GM2 gangliosidosis patients (n = 20) | |
|---|---|
Mean age (range) | 49 (25–68) |
Male | 12 (60%) |
Female | 8 (40%) |
Late-onset Tay-Sachs disease | 16 (80%) |
Late-onset Sandhoff disease | 4 (20%) |