TY - JOUR AU - Bruckner, Anna L. AU - Losow, Michael AU - Wisk, Jayson AU - Patel, Nita AU - Reha, Allen AU - Lagast, Hjalmar AU - Gault, Jamie AU - Gershkowitz, Jayne AU - Kopelan, Brett AU - Hund, Michael AU - Murrell, Dedee F. PY - 2020 DA - 2020/01/03 TI - The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers JO - Orphanet Journal of Rare Diseases SP - 1 VL - 15 IS - 1 AB - Little information is available regarding the burden of living with and managing epidermolysis bullosa, including the distinct challenges faced by patients with different disease types/subtypes. SN - 1750-1172 UR - https://doi.org/10.1186/s13023-019-1279-y DO - 10.1186/s13023-019-1279-y ID - Bruckner2020 ER -