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Table 3 Impact of cNF on quality of life depending of cNF severity and visibility

From: Cutaneous neurofibromas: patients’ medical burden, current management and therapeutic expectations: results from an online European patient community survey

MeanAverage impactFamily lifeProfessional lifeMoney spent for cNFDesire to have childrenPrivate lifeSocial lifeDaily life in generalEveryday mood
S Grade 1 (n = 24)4.33.83.74.24.94.34.44.44.9
S Grade 2 (n = 83)4.33.23.73.64.24.84.94.95.4
S Grade 3 (n = 29)3.73.32.72.74.33.43.44.44.8
S Grade 4–5 (n = 34)5.74.84.44.65.36.26.36.47.1
V Grade 1 (n = 78)4.13.03.33.44.34.64.44.55.1
V Grade 2 (n = 60)4.43.73.73.64.74.44.85.05.5
V Grade 3 (n = 13)5.04.54.83.83.35.05.06.25.9
V Grade 4–5 (n = 19)6.15.54.65.25.66.46.76.87.5
  1. Score from 0 to 10, 0 = no negative impact and 10 = considerable negative impact
  2. Description of the impact of cNF on several aspects of quality of life: family life, professional life, economic burden, private life, social life, daily life in general, and everyday mood – by a mean score. Results are presented by severity grade and visibility grade