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Table 3 Impact of cNF on quality of life depending of cNF severity and visibility

From: Cutaneous neurofibromas: patients’ medical burden, current management and therapeutic expectations: results from an online European patient community survey

Mean

Average impact

Family life

Professional life

Money spent for cNF

Desire to have children

Private life

Social life

Daily life in general

Everyday mood

S Grade 1 (n = 24)

4.3

3.8

3.7

4.2

4.9

4.3

4.4

4.4

4.9

S Grade 2 (n = 83)

4.3

3.2

3.7

3.6

4.2

4.8

4.9

4.9

5.4

S Grade 3 (n = 29)

3.7

3.3

2.7

2.7

4.3

3.4

3.4

4.4

4.8

S Grade 4–5 (n = 34)

5.7

4.8

4.4

4.6

5.3

6.2

6.3

6.4

7.1

V Grade 1 (n = 78)

4.1

3.0

3.3

3.4

4.3

4.6

4.4

4.5

5.1

V Grade 2 (n = 60)

4.4

3.7

3.7

3.6

4.7

4.4

4.8

5.0

5.5

V Grade 3 (n = 13)

5.0

4.5

4.8

3.8

3.3

5.0

5.0

6.2

5.9

V Grade 4–5 (n = 19)

6.1

5.5

4.6

5.2

5.6

6.4

6.7

6.8

7.5

  1. Score from 0 to 10, 0 = no negative impact and 10 = considerable negative impact
  2. Description of the impact of cNF on several aspects of quality of life: family life, professional life, economic burden, private life, social life, daily life in general, and everyday mood – by a mean score. Results are presented by severity grade and visibility grade