How important is it to you that the treatment … | ||||||
Please tick a box for each statement | Not at all important | Slightly important | Moderately important | Fairly important | Very important | Does not apply to me |
ensures you feel less tired | □ | □ | □ | □ | □ | □ |
reduces the pain in your hands and feet | □ | □ | □ | □ | □ | □ |
ensures you are less breathless when performing daily activities or with strenuous activities | □ | □ | □ | □ | □ | □ |
reduces gastrointestinal disorders (nausea, pain, diarrhoea, constipation) | □ | □ | □ | □ | □ | □ |
enables you to tolerate variations with heat and temperature better | □ | □ | □ | □ | □ | □ |
reduces the intensity, frequency, or duration of painful attacks | □ | □ | □ | □ | □ | □ |
enables you to continue working | □ | □ | □ | □ | □ | □ |
enables you to cope with physical exertion better | □ | □ | □ | □ | □ | □ |
enables you to live normally, as if you did not have Fabry disease (handicraft, housework, gardening, playing with your children, grandchildren.) | □ | □ | □ | □ | □ | □ |
enables you to maintain your social life (work, school, family, friends.) | □ | □ | □ | □ | □ | □ |
enables you to travel easily | □ | □ | □ | □ | □ | □ |
enables you to have a better quality of life | □ | □ | □ | □ | □ | □ |
ensures you are not dependent on other people on a daily basis | □ | □ | □ | □ | □ | □ |
enables you to spend time with your family | □ | □ | □ | □ | □ | □ |
enables you to stay fit for longer | □ | □ | □ | □ | □ | □ |
prevents the onset of heart, kidney, or neurological problems | □ | □ | □ | □ | □ | □ |
slows down the deterioration of your organs (kidneys, heart, brain.) | □ | □ | □ | □ | □ | □ |
enables you to feel good every day, even on days preceding or following treatment administration | □ | □ | □ | □ | □ | □ |
does not cause side effects or adverse effects related to the medication | □ | □ | □ | □ | □ | □ |
ensures you do not experience pain and tiredness returning on days before medication is administered | □ | □ | □ | □ | □ | □ |
reduces the amount of medication that you are taking | □ | □ | □ | □ | □ | □ |
How important is it to you to have a treatment … | ||||||
Please tick a box for each statement | Not at all important | Slightly important | Moderately important | Fairly important | Very important | Does not apply to me |
that easily fits into your schedule and lifestyle | □ | □ | □ | □ | □ | □ |
that you can take or administer on your own | □ | □ | □ | □ | □ | □ |
that is easy to administer | □ | □ | □ | □ | □ | □ |
that is administered orally (in tablet or capsule form) | □ | □ | □ | □ | □ | □ |
with a short duration of administration | □ | □ | □ | □ | □ | □ |