Skip to main content

Table 5 Contingency tables and summary output of the univariate analysis. Characteristic: variable taken into account; OR (95% CI): Odds Ratio with 95% Confidence Interval; p-value: Likelihood Ratio p-value. aVariables entering the multivariate analysis (see the text for abbreviations and further details)

From: Experiences of patients with Poland syndrome of diagnosis and care in Italy: a pilot survey

CharacteristicDescriptive statisticsUnivariate analysis
Time of DiagnosisOR (95%C.I.)p-value
EARLYLATE  
Gender   0.1182
 MALE13 (52%)12 (48%)1 
 FEMALE10 (31.25%)22 (68.75%)2.31 (0.81: 6.86) 
Macro Region   0.7131
 LIGURIA, LOMBARDIA5 (35.71%)9 (64.29%)1 
 OTHERS18 (41.86%)25 (58.14%)0.8 (0.23: 2.62) 
Region of Diagnosisa   0.0372
 IN16 (53.33%)14 (46.67%)1 
 OUT7 (25.93%)20 (74.07%)3.11 (1.07: 9.7) 
Who Diagnoseda   0.0015
 NEONATOLOGY UNIT10 (100%)0 (0%)1 
 PEDIATRICIAN2 (50%)2 (50%)21 (1.22: 3297.07) 
 GENERAL PRACTITIONER0 (0%)1 (100%)63 (1.55: 22813.53) 
 SPECIALIZED MED CENTRE7 (31.82%)15 (68.18%)43.4 (4.52: 5865.49) 
 SELF-DIAGNOSIS1 (14.29%)6 (85.71%)91 (6.1: 14644.97) 
 OTHER3 (23.08%)10 (76.92%)63 (5.62: 8933.3) 
Time of Symptoms Onset   0.3965
 AT BIRTH22 (42.31%)30 (57.69%)1 
 LATER1 (20%)4 (80%)2.21 (0.37: 23.2) 
Difficulty Finding a Specialist for Treatmenta   0.0193
 NO17 (58.62%)12 (41.38%)1 
 YES6 (23.08%)20 (76.92%)4.42 (1.46: 14.66) 
 DON’T KNOW0 (0%)2 (100%)7 (0.51: 998.96) 
Quality of Treatment   0.5070
 EXCELLENT7 (43.75%)9 (56.25%)1 
 GOOD13 (50%)13 (50%)0.79 (0.23: 2.67) 
 SUFFICIENT2 (28.57%)5 (71.43%)1.74 (0.31: 12) 
 UNSATISFACTORY1 (16.67%)5 (83.33%)2.89 (0.44: 32.89) 
 OTHER0 (0%)2 (100%)3.95 (0.27: 577.44) 
Impacta   0.0160
 NOT MY CASE15 (62.5%)9 (37.5%)1 
 NONE4 (20%)16 (80%)5.98 (1.7: 24.58) 
 IMPORTANT PSY IMPACT2 (18.18%)9 (81.82%)6.2 (1.38: 38.2) 
 MILD PSY IMPACT1 (100%)0 (0%)0.54 (0: 11.32) 
 FUNCTIONAL IMPAIRMENT1 (100%)0 (0%)0.54 (0: 11.32) 
Reference Figure during Treatment   0.8297
 NO6 (37.5%)10 (62.5%)1 
 YES13 (39.39%)20 (60.61%)0.94 (0.27: 3.08) 
 DON’T KNOW4 (50%)4 (50%)0.62 (0.12: 3.22) 
Feeling Understood during Treatment   0.5698
 NO3 (30%)7 (70%)1 
 YES17 (40.48%)25 (59.52%)0.68 (0.15: 2.65) 
 DON’T KNOW3 (60%)2 (40%)0.33 (0.04: 2.54) 
Knowledge of tax Exemption   0.2009
 NO0 (0%)3 (100%)1 
 YES23 (42.59%)31 (57.41%)0.19 (0: 2.12) 
How They Found Out about Exemptiona   0.0468
 GENERAL PRACTITIONER7 (87.5%)1 (12.5%)1 
 REGION BOOKING MEDICAL CENTER10 (35.71%)18 (64.29%)8.81 (1.6: 92.23) 
 AISP4 (28.57%)10 (71.43%)11.67 (1.78: 137.63) 
 REFERENCE MEDICAL CENTER2 (50%)2 (50%)5 (0.45: 80.16) 
Exemption   0.1047
 NO2 (18.18%)9 (81.82%)1 
 YES21 (45.65%)25 (54.35%)0.31 (0.06: 1.26) 
Sufficiency of the Exemption   0.1556
 NO3 (25%)9 (75%)1 
 YES14 (50%)14 (50%)0.37 (0.08: 1.45) 
Feeling of Protection   0.1048
 NO8 (29.63%)19 (70.37%)1 
 YES8 (66.67%)4 (33.33%)0.23 (0.05: 0.9) 
 DON’T KNOW7 (38.89%)11 (61.11%)0.67 (0.19: 2.3) 
Forgo Treatment   0.3773
 NO16 (48.48%)17 (51.52%)1 
 YES5 (29.41%)12 (70.59%)2.14 (0.66: 7.62) 
 DON’T KNOW2 (28.57%)5 (71.43%)2.07 (0.43: 12.88) 
General Practitioner _Pediatrician ‘s Role   0.2250
 FUNDAMENTAL4 (80%)1 (20%)1 
 QUITE RELEVANT2 (28.57%)5 (71.43%)6.6 (0.71: 99.65) 
 LITTLE RELEVANT10 (45.45%)12 (54.55%)3.57 (0.54: 39.93) 
 NONE7 (30.43%)16 (69.57%)6.6 (1: 74.93) 
Collaboration   0.2571
 NO18 (45%)22 (55%)1 
 YES3 (50%)3 (50%)0.82 (0.16: 4.32) 
 DON’T KNOW2 (18.18%)9 (81.82%)3.12 (0.76: 17.93) 
AISP Usefulness   0.767
 NO0 (0%)1 (100%)1 
 YES22 (42.31%)30 (57.69%)0.45 (0: 8.88) 
 DON’T KNOW1 (25%)3 (75%)0.78 (0: 28.48) 
AISP Advantage in Care   0.1429
 NO2 (66.67%)1 (33.33%)1 
 YES19 (45.24%)23 (54.76%)2.01 (0.25: 23.32) 
 DON’T KNOW2 (16.67%)10 (83.33%)7 (0.65: 109.9) 
Join AISP   0.2438
 NO3 (25%)9 (75%)1 
 YES20 (44.44%)25 (55.56%)0.46 (0.1: 1.67) 
Participate in AISP Activitiesa   0.0103
 NO9 (26.47%)25 (73.53%)1 
 YES14 (60.87%)9 (39.13%)0.24 (0.08: 0.72) 
PolandDay Usefulnessa   0.0095
 No or Partial0 (0%)8 (100%)1 
 YES23 (46.94%)26 (53.06%)0.07 (0: 0.58) 
Volunteer   0.4363
 NO2 (28.57%)5 (71.43%)1 
 YES6 (31.58%)13 (68.42%)0.94 (0.14: 5.3) 
 DON’T KNOW15 (48.39%)16 (51.61%)0.48 (0.08: 2.36) 
Research   0.6361
 YES23 (41.07%)33 (58.93%)1 
 DON’T KNOW0 (0%)1 (100%)2.1 (0.11: 312.63) 
Genetic Donation   0.0715
 YES19 (36.54%)33 (63.46%)1 
 DON’T KNOW4 (80%)1 (20%)0.19 (0.02: 1.15) 
Family Involvement in Genetic Research   0.3269
 NO2 (50%)2 (50%)1 
 YES15 (34.88%)28 (65.12%)1.84 (0.26: 13.04) 
 DON’T KNOW6 (60%)4 (40%)0.69 (0.08: 6.17)