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Table 3 Contingency tables and summary output of the univariate analysis. Characteristic: variable taken into account; OR (95% CI): Odds Ratio with 95% Confidence Interval; p-value: Likelihood Ratio p-value. aVariables entering the multivariate analysis (see the text for abbreviations and further details)

From: Experiences of patients with Poland syndrome of diagnosis and care in Italy: a pilot survey

CharacteristicDescriptive statisticsUnivariate analysis
RegionDgnOR (95%C.I.)p-value
INOUT  
Gender   0.0958
 MALE10 (40%)15 (60%)1 
 FEMALE20 (62.5%)12 (37.5%)0.41 (0.14: 1.17) 
Macro Regiona   0.0041
 LIGURIA, LOMBARDIA12 (85.71%)2 (14.29%)1 
 OTHERS18 (41.86%)25 (58.14%)6.89 (1.78: 38.57) 
Time of Diagnosisa   0.0372
 EARLY16 (69.57%)7 (30.43%)1 
 LATE14 (41.18%)20 (58.82%)3.11 (1.07: 9.70) 
Who Diagnoseda   0.0045
 NEONATOLOGY UNIT9 (90%)1 (10%)1 
 PEDIATRICIAN3 (75%)1 (25%)2.71 (0.18: 43.60) 
 GENERAL PRACTITIONER0 (0%)1 (100%)19 (0.69: 3428.71) 
 SPECIALIZED MED CENTRE6 (27.27%)16 (72.73%)16.08 (2.84: 173.45) 
 SELF-DIAGNOSIS2 (28.57%)5 (71.43%)13.93 (1.73: 197.59) 
 OTHER10 (76.92%)3 (23.08%)2.11 (0.28: 24.78) 
Time of Symptoms Onset   0.9999
 AT BIRTH0 (NaN%)0 (NaN%)1 
 LATER3 (60%)2 (40%)1 (0.02: 60.68) 
Difficulty Finding a Specialist for Treatment   0.6585
 NO17 (58.62%)12 (41.38%)1 
 YES12 (46.15%)14 (53.85%)1.62 (0.57: 4.71) 
 DON’T KNOW1 (50%)1 (50%)1.4 (0.1: 18.82) 
Quality of Treatment   0.5953
 EXCELLENT8 (50%)8 (50%)1 
 GOOD16 (61.54%)10 (38.46%)0.64 (0.18: 2.17) 
 SUFFICIENT3 (42.86%)4 (57.14%)1.29 (0.24: 7.45) 
 UNSATISFACTORY3 (50%)3 (50%)1 (0.16: 6.08) 
 OTHER0 (0%)2 (100%)5 (0.34: 731.03) 
Impact   0.6293
 NOT MY CASE13 (54.17%)11 (45.83%)1 
 NONE8 (40%)12 (60%)1.73 (0.54: 5.73) 
 IMPORTANT PSY IMPACT7 (63.64%)4 (36.36%)0.70 (0.16: 2.84) 
 MILD PSY IMPACT1 (100%)0 (0%)0.39 (0.00: 8.09) 
 FUNCTIONAL IMPAIRMENT1 (100%)0 (0%)0.39 (0: 8.09) 
Reference Figure during Treatment   0.9440
 NO9 (56.25%)7 (43.75%)1 
 YES17 (51.52%)16 (48.48%)1.19 (0.37: 3.94) 
 DON’T KNOW4 (50%)4 (50%)1.27 (0.25: 6.63) 
Feeling Understood during Treatment   0.8257
 NO6 (60%)4 (40%)1 
 YES21 (50%)21 (50%)1.44 (0.38: 5.90) 
 DON’T KNOW3 (60%)2 (40%)1.03 (0.12: 7.95) 
Knowledge of tax Exemption   0.6776
 NO2 (66.67%)1 (33.33%)1 
 YES28 (51.85%)26 (48.15%)1.55 (0.19: 17.75) 
How They Found Out about Exemption   0.6893
 GENERAL PRACTITIONER5 (62.5%)3 (37.5%)1 
 REGION BOOKING MEDICAL CENTER14 (50%)14 (50%)1.57 (0.35: 7.92) 
 AISP6 (42.86%)8 (57.14%)2.05 (0.39: 12.06) 
 REFERENCE MEDICAL CENTER3 (75%)1 (25%)0.67 (0.05: 6.64) 
Exemption   0.8995
 NO6 (54.55%)5 (45.45%)1 
 YES24 (52.17%)22 (47.83%)1.09 (0.30: 4.02) 
Sufficiency of the Exemption   0.5038
 NO5 (41.67%)7 (58.33%)1 
 YES15 (53.57%)13 (46.43%)0.64 (0.16: 2.38) 
Feeling of Protection   0.0691
 NO10 (37.04%)17 (62.96%)1 
 YES9 (75%)3 (25%)0.22 (0.05: 0.88) 
 DON’T KNOW11 (61.11%)7 (38.89%)0.39 (0.11: 1.27) 
Forgo Treatmenta   0.0003
 NO23 (69.7%)10 (30.3%)1 
 YES2 (11.76%)15 (88.24%)13.88 (3.47: 80.21) 
 DON’T KNOW5 (71.43%)2 (28.57%)1.02 (0.16: 5.08) 
General Practitioner _Pediatrician’s Role   0.3299
 FUNDAMENTAL2 (40%)3 (60%)1 
 QUITE RELEVANT6 (85.71%)1 (14.29%)0.16 (0.01: 1.61) 
 LITTLE RELEVANT11 (50%)11 (50%)0.71 (0.10: 4.42) 
 NONE11 (47.83%)12 (52.17%)0.78 (0.11: 4.77) 
Collaboration   0.9846
 NO21 (52.5%)19 (47.5%)1 
 YES3 (50%)3 (50%)1.10 (0.21: 5.79) 
 DON’T KNOW6 (54.55%)5 (45.45%)0.93 (0.25: 3.42) 
AISP Usefulness   0.7134
 NO0 (0%)1 (100%)1 
 YES28 (53.85%)24 (46.15%)0.29 (0: 5.63) 
 DON’T KNOW2 (50%)2 (50%)0.33 (0: 10.12) 
AISP Advantage in Care   0.6757
 NO2 (66.67%)1 (33.33%)1 
 YES23 (54.76%)19 (45.24%)1.38 (0.17: 16.05) 
 DON’T KNOW5 (41.67%)7 (58.33%)2.27 (0.23: 30.51) 
Join AISP   0.4025
 NO5 (41.67%)7 (58.33%)1 
 YES25 (55.56%)20 (44.44%)0.59 (0.16: 2.03) 
Participate in AISP Activities   0.6365
 NO17 (50%)17 (50%)1 
 YES13 (56.52%)10 (43.48%)0.78 (0.27: 2.21) 
PolandDayUsefulness   0.3722
 No or Partial3 (37.5%)5 (62.5%)1 
 YES27 (55.1%)22 (44.9%)0.52 (0.11: 2.18) 
Volunteer   0.2516
 NO3 (42.86%)4 (57.14%)1 
 YES13 (68.42%)6 (31.58%)0.37 (0.06: 2.00) 
 DON’T KNOW14 (45.16%)17 (54.84%)0.94 (0.18: 4.51) 
Research   0.5067
 YES29 (51.79%)27 (48.21%)1 
 DON’T KNOW1 (100%)0 (0%)0.36 (0.00: 7.00) 
Genetic Donation   0.2339
 YES26 (50%)26 (50%)1 
 DON’T KNOW4 (80%)1 (20%)0.33 (0.03: 1.96) 
Family Involvement in Genetic Research   0.5371
 NO1 (25%)3 (75%)1 
 YES23 (53.49%)20 (46.51%)0.37 (0.03: 2.50) 
 DON’T KNOW6 (60%)4 (40%)0.3 (0.02: 2.58)