Table 2 Socio-economic status and age of parents, disease manifestations and management details of IP-affected children
From: Incontinentia pigmenti burden scale: designing a family burden questionnaire
Items | N | Population | data missing | % |
|---|---|---|---|---|
One of the parents with IP | 26 | 61 | 0 | 42.6% |
Living in a couple | 31 | 61 | 0 | 50.8% |
Living alone | 20 | 61 | 0 | 32.8% |
Average parents’ age | 41.7 ± 12.8 | |||
High income group | 16 | 61 | 0 | 26.2% |
Low income group | 8 | 61 | 0 | 13.1% |
Unemployed | 17 | 61 | 0 | 27.9% |
Higher education qualification | 18 | 61 | 0 | 29.5% |
No qualifications | 5 | 61 | 0 | 8.2% |
100% health insurance cover | 7 | 53 | 8 | 13.2% |
Diagnosis made by a dermatologist | 49 | 53 | 8 | 80.3% |
Clinical signs | ||||
ocular | 52 | 61 | 9 | 85.3% |
dental | 50 | 61 | 11 | 82.0% |
neurological | 20 | 61 | 41 | 32.8% |
cutaneous | 18 | 61 | 43 | 29.5% |
Satisfied overall with care provided | 27 | 57 | 4 | 47.4% |
Satisfied with medical care provided by your physician | 25 | 50 | 11 | 50.0% |
Followed by an ophthalmologist | 52 | 61 | 0 | 85.3% |
Followed by a psychologist | 12 | 61 | 0 | 19.7% |
Followed by a speech therapist | 17 | 61 | 0 | 27.9% |
Followed by an occupational therapist | 11 | 53 | 0 | 20.8% |
Followed by a massage therapist | 15 | 61 | 0 | 24.6% |
Attended a therapy education programme | 7 | 61 | 0 | 11,5% |
Contact with an association | 45 | 61 | 0 | 73.8% |