Fig. 6From: Pathway to diagnosis and burden of illness in mucopolysaccharidosis type VII – a European caregiver surveyNumber of medical appointments in a typical year (n = 12). Patients attend multiple appointments in a typical year and see a variety of medical professionals. This figure does not include visits made for a clinical trial or any additional comments that were listed by respondents in the questionnaire. These comments included ‘There are routine checks every six months’, ‘cardiologist once a year’, and ‘complete check-up when needed’. ENT: ears, nose and throatBack to article page