Table 1 Demographic and clinical characteristics of patients with rare diseases according to subgroups [n(%)]
From: Analysis of economic burden and its associated factors of twenty-three rare diseases in Shanghai
Inpatients | Outpatients | Total | |
|---|---|---|---|
Age group (years) | |||
≤ 14 | 816 (34.23%) | 2632 (23.32%) | 3448 (25.2%) |
15~64 | 1287 (53.98%) | 7443 (65.94%) | 8730 (63.9%) |
≥ 65 | 281 (11.79%) | 1213 (10.74%) | 1494 (10.9%) |
Gender | |||
Male | 5292 (75.01%) | 1946 (75.40%) | 7248 (75.1%) |
Female | 1763 (24.99%) | 635 (24.60%) | 2403 (24.9%) |
Disease type | |||
Endocrine and metabolic disease | 4479 (36.89%) | 879 (23.96%) | 5358 (33.86%) |
Skin disease | 128 (1.07%) | 45 (1.23%) | 173 (1.09%) |
Blood disease | 5667 (46.76%) | 1715 (46.74%) | 7406 (46.80%) |
Digestive disease | 1300 (10.71%) | 315 (8.59%) | 1616 (10.21%) |
Bone disease | 115 (0.95%) | 36 (0.98%) | 151 (0.95%) |
Cardiovascular disease | 423 (3.48%) | 654 (17.83%) | 1077 (6.81%) |
Immunological disease | 14 (0.12%) | 14 (0.38%) | 28 (0.18%) |
Kidney disease | 5 (0.04%) | 5 (0.30%) | 16 (0.10%) |
Number of complications | |||
1 | 4947 (64.19%) | 787 (27.59%) | 5734 (54.24%) |
2 | 1791 (23.24%) | 480 (16.83%) | 2272 (21.49%) |
3 | 607 (7.88%) | 378 (13.25%) | 994 (9.40%) |
4 | 151 (1.96%) | 295 (10.34%) | 446 (4.22%) |
5 | 74 (0.96%) | 234 (8.20%) | 309 (2.92%) |
6 | 32 (0.42%) | 187 (6.56%) | 220 (2.08%) |
7 | 27 (0.35%) | 126 (4.42%) | 153 (1.45%) |
8 | 15 (0.19%) | 107 (3.75%) | 122 (1.15%) |
9 | 14 (0.19%) | 64 (2.24%) | 79 (0.75%) |
> 10 | 49 (0.64%) | 194 (6.80%) | 243 (2.30%) |
Payment type | |||
Social Security Card | 4193 (34.79%) | 522 (18.89%) | 4715 (31.80%) |
Medicare Card | 2013 (16.70%) | 313 (11.33%) | 2330 (15.71%) |
Hospital Link Card | 5517 (45.78%) | 1862 (67.39%) | 7388 (49.82%) |
Hospital Self-Charge Card | 324 (2.69%) | 37 (1.34%) | 361 (2.43%) |
Others | 5 (0.04%) | 29 (1.05%) | 34 (0.23%) |