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Table 4 Still in the situation in which you/the person you care for are sharing your health information. On a scale from 1 to 5, how much control would you like to have over this information?

From: Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations

(n = 2005) Number of people % of responses
1 - No control (on who, how and why using your information) 21 1%
2 77 4%
3 301 15%
4 671 33%
5 - Full control (on who, how and why using your information) 935 47%
  1. Because of rounding, percentage might not add up to exactly 100%