From: Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations
(n = 2005)
Number of people
% of responses
1 - No control (on who, how and why using your information)
21
1%
2
77
4%
3
301
15%
4
671
33%
5 - Full control (on who, how and why using your information)
935
47%