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Table 4 Still in the situation in which you/the person you care for are sharing your health information. On a scale from 1 to 5, how much control would you like to have over this information?

From: Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations

(n = 2005)

Number of people

% of responses

1 - No control (on who, how and why using your information)

21

1%

2

77

4%

3

301

15%

4

671

33%

5 - Full control (on who, how and why using your information)

935

47%

  1. Because of rounding, percentage might not add up to exactly 100%