Table 2 From the list below, what are the three main options that would encourage you to participate in a project involving the sharing of your/the person you care for health information? (Please select the responses in priority order)
(n = 2013) | Number of people | % of responses |
|---|---|---|
The possibility to learn more information about your disease | 1382 | 69% |
The possibility to discuss and ask questions directly to professionals involved in the project | 1322 | 66% |
The possibility to be informed on the results of the project | 1251 | 62% |
The possibility to access your health information | 541 | 27% |
The option to withdraw the information at any point during the project | 505 | 25% |
Being sure to be contacted if your information has been misused | 478 | 24% |
Having the time to process the information and decide at a later stage on whether you want to participate | 343 | 17% |
Other | 46 | 2% |
I wouldn’t give the possibility of sharing these health information | 28 | 1% |
Don’t know | 25 | 1% |