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Table 10 And how often would you like to be informed about the outcome of the project?

From: Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations

(n = 2005) Number of people % of responses
Several time a week 112 6%
Once a week 427 21%
Once a month 1101 55%
Once a year 241 12%
Don’t know 124 6%