From: The updated retrospective questionnaire study of sporadic inclusion body myositis in Japan
1. Swallowing | 5 Dressing | 9 Walking |
4 Normal | 4 Normal | 4 Normal |
3 Early eating problems occasional choking | 3 Independent but with increased effort or decreased efficiency. | 3 Slow or mild unsteadiness |
2 Dietary consistency changes | 2 Independent but requires assistive devices or modified techniques | 2 Intermittent use of an assistive device (AFO, cane walker) |
1 Frequent choking | 1 Requires assistance from caregiver for some clothing items (Velcro, snaps,shirts,shirts without buttons, etc.) | 1 Unable to walk without assistive device |
0 Needs tube feeding | 0 Total dependence | 0 Wheelchair dependent |
2 Handwriting (with dominant hand prior to IBM onset) | 6 Hygiene (Bathing & Toileting) | 10 Climbing Stairs |
4 Normal | 4 Normal | 4 Normal |
3 Slow or sloppy; all words are legible | 3 Independent but with increased effort or decreased activity | 3 Slow with hesitation or increased effort; uses hand rail intermittently |
2 Not all words are legible | 2 Independent but requires use of assistive devices (shower chair, raised toilet seat, etc) | 2 Dependent on hand rail |
1 Able to grip pen but unable to write | 1 Requires occasional assistance from caregiver | 1 Dependent on hand rail and additional support (cane or person) |
0 Unable to grip pen | 0 Completely dependent | 0 Cannot climb stairs |
3 Cutting Food & Handling Utensils | 7 Turning In Bed & Adjusting Covers | |
4 Normal | 4 Normal | |
3 Somewhat slow and clumsy, but no help needed | 3 Somewhat slow and clumsy but no help needed | |
2 Can cut most foods although clumsy and slow; some help needed; can’t use chopsticks | 2 Can turn alone or adjust sheets, but with great difficulty | |
1 Food must be cut by someone, but can still feed slowly | 1 Can initiate, but not turn or adjust sheets alone (needs caregivers) | |
0 Needs to be fed | 0 Unable or requires total assistance | |
4 Fine Motor Tasks (Opening doors, using keys & picking up small objects) | 8 Sit to Stand | |
4 Independent | 4 Independent (without use of arms) | |
3 Slow or clumsy in completing task | 3 Performs with substitute motions (leaning forward, rocking) but without use of arms | |
2 Independent but requires modified techniques or assistive devices | 2 Requires use of arms | |
1 Frequently requires assistance from caregiver (e.g. bottons) | 1 Requires assistance from a device or person | |
0 Unable | 0 Unable to stand |