Table 1 Three-step process in establishing a larger multidisciplinary team
Steps | Participants | Main Action |
|---|---|---|
Step 1 | A single physician who has a passion for TSC | • Treat patients with TSC • Liaise with patient families, organizations, and other physicians • Identify a care coordinator • Initial drive of the MDT process |
Step 2 | Core team (comprising a care coordinator and members of the core medical specialties) | • Liaise with patients/families • Coordinate physicians for management decisions • Organize patient follow-up and referrals • Liaise with other centers • Collaborate with TSC patient organization if available and able |
Step 3 | Full MDT and reference network with the assistance of the care coordinator | • Operational MDT |