Table 2 Participant characteristics by subgroup
Variable | Adults with Duchenne | Caregivers | Total | |||
|---|---|---|---|---|---|---|
n | % | n | % | n | % | |
Mobility | ||||||
Uses wheelchair most or all the time | 27 | 100.0 | 91 | 36.8 | 118 | 43.1 |
Walks with assistance or better | – | – | 156 | 63.2 | 156 | 56.9 |
Sex | ||||||
Male | 27 | 100.0 | 53 | 21.5 | 80 | 29.2 |
Female | – | – | 194 | 78.5 | 194 | 70.8 |
Race/ethnicity | ||||||
White, non-Hispanic | 17 | 63.0 | 193 | 78.1 | 210 | 76.6 |
Black, non-Hispanic | 0 | 0.0 | 4 | 1.6 | 4 | 1.5 |
Hispanic, all-races | 5 | 18.5 | 20 | 8.1 | 25 | 9.1 |
Other, non-Hispanic | 3 | 11.1 | 27 | 10.9 | 30 | 11.0 |
Refused | 2 | 7.4 | 3 | 1.2 | 5 | 1.8 |
Marital status | ||||||
Married or committed relationship | 1 | 3.7 | 211 | 85.4 | 212 | 77.4 |
Single | 24 | 88.9 | 8 | 3.2 | 32 | 11.7 |
Divorced or separated | 0 | 0.0 | 27 | 10.9 | 27 | 9.9 |
Widowed | 0 | 0.0 | 1 | 0.4 | 1 | 0.4 |
Refused | 2 | 7.4 | 0 | 0.0 | 2 | 0.7 |
Educational attainment | ||||||
High school or less | 14 | 51.9 | 49 | 19.8 | 63 | 23.0 |
Technical school or associate degree | 3 | 11.1 | 34 | 13.8 | 37 | 13.5 |
Bachelor’s degree | 3 | 11.1 | 94 | 38.1 | 97 | 35.4 |
Graduate or professional degree | 5 | 18.5 | 69 | 27.9 | 74 | 27.0 |
Refused | 2 | 7.4 | 1 | 0.4 | 3 | 1.1 |
Annual household income | ||||||
Less than $50,000 | 8 | 29.6 | 12 | 4.9 | 20 | 7.3 |
$24,000 – $50,000 | 1 | 3.7 | 22 | 8.9 | 23 | 8.4 |
$51,000 – $75,000 | 1 | 3.7 | 30 | 12.2 | 31 | 11.3 |
$75,001 – $100,000 | 1 | 3.7 | 45 | 18.2 | 46 | 16.8 |
More than $100,000 | 3 | 11.1 | 110 | 44.5 | 113 | 41.2 |
Prefer not to answer or refused | 13 | 48.2 | 28 | 11.3 | 41 | 15.0 |
Previous clinical trial participation | ||||||
Yes | 5 | 18.5 | 128 | 51.8 | 133 | 48.5 |
No | 22 | 81.5 | 119 | 48.2 | 141 | 51.5 |