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Table 2 Classification of quality of life

From: Methylmalonic acidemia/propionic acidemia – the biochemical presentation and comparing the outcome between liver transplantation versus non-liver transplantation groups

 

Unscheduled admissions/yr

Tube feeding

Metabolism-correcting/ immunosuppressive agents

Good

≦ 2 times

(−)

1

Mildly impaired (if any)

3–5

< 25%

2–3

Moderately impaired (if any)

6–8

25–50%

4–5

Severely impaired (if any)

≧9

> 50%

≧6

  1. We revised from Morioka et al. on the classification of quality of life. Unscheduled admission is defined as any admission due to unexpected acute decompensation, infection…and etc., which was collected from hospital records. The tube feeding ratio counts the days of length of nasogastric, orogastric tube or from gastrostomy within 1 year, then divided by 365*100%, indicating the severity of feeding quality, based on the nursing records and/or the recell of the main caregiver
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172