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Table 4 Perceived information and satisfaction (EORTC QLQ-INFO25)

From: Web-based personalised information and support for patients with a neuroendocrine tumour: randomised controlled trial

  Control group (n = 45) Intervention group (n = 46)
Outcome Pre Median (range) Post Median (range) Pre Median (range) Post Median (range) p
Information about
 Disease 50 (33–58) 50 (42–65) 50 (33–60) 50 (33–67) NS
 Medical tests 67 (44–67) 67 (44–67) 67 (56–67) 67 (28–56) NS
 Treatments 44 (25–56) 39 (33–56) 44 (28–56) 8 (0–27) NS
 Other services 17 (0–25) 17 (8–33) 17 (6–23) 8 (0–27) NS
 Different location of care facilities 0 (0–33) 33 (0–33) 0 (0–33) 0 (0–33) NS
 How to help yourself 33 (0–33) 33 (0–33) 17 (0–33) 33 (0–33) NS
Satisfaction with information 67 (33–67) 67 (33–67) 67 (33–67) 67 (33–67) NS
Helpfulness of information 67 (50–67) 67 (67–67) 67 (67–67) 67 (33–67) NS
Percentage of patients
 Received written information 91 91 78 80  
 Received cd/video 2 2 2 0  
Wish to receive more info 53 31 57 38  
 Wish to receive less info 2 0 2 0  
  1. Higher scores indicate more/better information and satisfaction. The p-value shows the differences between the pre-post changes of the control group versus the intervention group
  2. cd = compact disk, NS = no significant difference, Pre Median = median score at baseline, Post median = median score a 12 weeks, range = interquartile range