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Table 4 Perceived information and satisfaction (EORTC QLQ-INFO25)

From: Web-based personalised information and support for patients with a neuroendocrine tumour: randomised controlled trial

 

Control group (n = 45)

Intervention group (n = 46)

Outcome

Pre

Median (range)

Post

Median (range)

Pre

Median (range)

Post

Median (range)

p

Information about

 Disease

50 (33–58)

50 (42–65)

50 (33–60)

50 (33–67)

NS

 Medical tests

67 (44–67)

67 (44–67)

67 (56–67)

67 (28–56)

NS

 Treatments

44 (25–56)

39 (33–56)

44 (28–56)

8 (0–27)

NS

 Other services

17 (0–25)

17 (8–33)

17 (6–23)

8 (0–27)

NS

 Different location of care facilities

0 (0–33)

33 (0–33)

0 (0–33)

0 (0–33)

NS

 How to help yourself

33 (0–33)

33 (0–33)

17 (0–33)

33 (0–33)

NS

Satisfaction with information

67 (33–67)

67 (33–67)

67 (33–67)

67 (33–67)

NS

Helpfulness of information

67 (50–67)

67 (67–67)

67 (67–67)

67 (33–67)

NS

Percentage of patients

 Received written information

91

91

78

80

 

 Received cd/video

2

2

2

0

 

Wish to receive more info

53

31

57

38

 

 Wish to receive less info

2

0

2

0

 
  1. Higher scores indicate more/better information and satisfaction. The p-value shows the differences between the pre-post changes of the control group versus the intervention group
  2. cd = compact disk, NS = no significant difference, Pre Median = median score at baseline, Post median = median score a 12 weeks, range = interquartile range