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Table 6 Caregiver Hoursa Spent on Daily Activities for Child

From: An online survey on burden of illness among families with post-stem cell transplant mucopolysaccharidosis type I children in the United States

Daily Activities

n

Mean

St Dev

Median

Min

Max

On basic hygiene, dressing or changing the child

26

1.34

0.74

1

0

3

 Subset: children ages 11–17 yrs

8

1.34

0.77

1.5

0

2

On feeding the child

26

1.20

1.18

1

0

6

 Subset: children ages 11–17 yrs

8

1.41

1.89

1

0

6

On helping the child to move

26

1.55

0.97

2

0

4

 Subset: children ages 11–17 yrs

8

1.34

0.93

1

0

3

On cooking and preparing special meals

26

2.16

2.99

1

0

12

 Subset: children ages 11–17 yrs

8

2.06

3.3

1

0

10

On administering drugs/treatments

26

1.51

1.01

1

0

4

 Subset: children ages 11–17 yrs

8

1.75

0.89

1.5

1

3

On bathing or showering the child

26

0.82

0.65

1

0

2

 Subset: children ages 11–17 yrs

8

0.75

0.64

0.75

0

2

TOTAL Hours Per Day

26

8.58

5.98

7.5

1

25

 Subset: children ages 11–17 yrs

8

8.66

7.28

7.13

1

25

  1. atotal may be greater than 24 h due to rounding and multiple tasks spent in same hours; 2 parents’ responses missing