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Table 6 Caregiver Hoursa Spent on Daily Activities for Child

From: An online survey on burden of illness among families with post-stem cell transplant mucopolysaccharidosis type I children in the United States

Daily Activities n Mean St Dev Median Min Max
On basic hygiene, dressing or changing the child 26 1.34 0.74 1 0 3
 Subset: children ages 11–17 yrs 8 1.34 0.77 1.5 0 2
On feeding the child 26 1.20 1.18 1 0 6
 Subset: children ages 11–17 yrs 8 1.41 1.89 1 0 6
On helping the child to move 26 1.55 0.97 2 0 4
 Subset: children ages 11–17 yrs 8 1.34 0.93 1 0 3
On cooking and preparing special meals 26 2.16 2.99 1 0 12
 Subset: children ages 11–17 yrs 8 2.06 3.3 1 0 10
On administering drugs/treatments 26 1.51 1.01 1 0 4
 Subset: children ages 11–17 yrs 8 1.75 0.89 1.5 1 3
On bathing or showering the child 26 0.82 0.65 1 0 2
 Subset: children ages 11–17 yrs 8 0.75 0.64 0.75 0 2
TOTAL Hours Per Day 26 8.58 5.98 7.5 1 25
 Subset: children ages 11–17 yrs 8 8.66 7.28 7.13 1 25
  1. atotal may be greater than 24 h due to rounding and multiple tasks spent in same hours; 2 parents’ responses missing