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Table 4 Frequency of Medical Tests and Examinations and Insurance Coverage

From: An online survey on burden of illness among families with post-stem cell transplant mucopolysaccharidosis type I children in the United States

Description N Children 1+ visit Total Visits in Last 6 Months Estimated PPPY Insurance Coverage Per Child
n (%)a
Complete Partial None
Audiometry 23 42 2.6 18 (78) 5 (22)
Blood Tests 31 90 5.6 24 (77) 7 (23)
Bronchoscopy 10 21 1.3 8 (80) 2 (20)
Echocardiogram 27 40 2.5 20 (74) 7 (26)
Electrocardiogram 27 47 2.9 21 (78) 6 (22)
Electromyogram 16 24 1.5 13 (81) 3 (19)
Lumbar puncture 11 23 1.4 8 (73) 3 (27)
Radiology (X-ray) 28 73 4.6 23 (82) 5 (18)
MRI or CT 25 40 2.5 21 (84) 3 (12) 1 (4)
Slit lamp 22 37 2.3 16 (73) 5 (23) 1 (5)
Spirometry 20 45 2.8 15 (75) 5 (25)
Urinalysis 23a 47 2.9 17 (77) 5 (23)
  1. MRI or CT magnetic resonance imaging or computerized tomography, PPPY per patient per year
  2. amay not equal 100% due to rounding