Skip to main content

Table 4 Frequency of Medical Tests and Examinations and Insurance Coverage

From: An online survey on burden of illness among families with post-stem cell transplant mucopolysaccharidosis type I children in the United States

Description

N Children 1+ visit

Total Visits in Last 6 Months

Estimated PPPY

Insurance Coverage Per Child

n (%)a

Complete

Partial

None

Audiometry

23

42

2.6

18 (78)

5 (22)

Blood Tests

31

90

5.6

24 (77)

7 (23)

Bronchoscopy

10

21

1.3

8 (80)

2 (20)

Echocardiogram

27

40

2.5

20 (74)

7 (26)

Electrocardiogram

27

47

2.9

21 (78)

6 (22)

Electromyogram

16

24

1.5

13 (81)

3 (19)

Lumbar puncture

11

23

1.4

8 (73)

3 (27)

Radiology (X-ray)

28

73

4.6

23 (82)

5 (18)

MRI or CT

25

40

2.5

21 (84)

3 (12)

1 (4)

Slit lamp

22

37

2.3

16 (73)

5 (23)

1 (5)

Spirometry

20

45

2.8

15 (75)

5 (25)

Urinalysis

23a

47

2.9

17 (77)

5 (23)

  1. MRI or CT magnetic resonance imaging or computerized tomography, PPPY per patient per year
  2. amay not equal 100% due to rounding