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Table 2 Frequency of Physician Specialist Visits and Insurance Coverage

From: An online survey on burden of illness among families with post-stem cell transplant mucopolysaccharidosis type I children in the United States

Description N Children with 1+ visit Total Visits in Last 6 Months Estimated PPPY Insurance Coverage per Child
n (%)a
Complete Partial None
Cardiologist 26 43 2.69 21 (81) 5 (19)
Dermatologist 15 b 22 1.38 11 (79) 2 (14) 1 (7)
Endocrinologist 22 32 2.0 17 (77) 5 (23)
Gastroenterologist 9 13 0.81 8 (89) 1 (11)
General surgeon 10 16 1.0 7 (70) 3 (30)
Hematologist 16 b 35 2.19 13 (87) 2 (13)
Immunologist 8 23 1.44 7 (88) 1 (12)
Nephrologist 12 25 1.56 10 (83) 1 (8) 1 (8)
Neurologist 20 b 29 1.81 15 (79) 4 (21)
Neurosurgeon 12 c 19 1.19 9 (90) 1 (10)
Oncologist 10 20 1.25 7 (70) 3 (30)
Ophthalmologist 21 c 39 2.44 14 (74) 5 (26)
Orthopedist 25 d 55 3.44 14 (74) 5 (26)
Otolaryngologist 15b 24 1.50 11 (79) 3 (21)
Psychiatrist 7 16 1.0 7 (100)
Pulmonologist 18b 26 1.63 12 (71) 4 (24) 1 (6)
Rheumatologist 6 17 1.06 6 (100)
Traumatologist 6 13 0.81 5 (83) 1 (17)
Urologist 11 30 1.88 10 (91) 1 (9)
  1. PPPY per patient per year
  2. amay not equal 100% due to rounding; b1 missing; c2 missing; d6 missing