Skip to main content

Table 1 Questionnaire Completion Table

From: Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study

Total Instrument Completion

Instrument

Completed Surveys

Percent

Total N

Information About You

290 (+/− specific items)

100%

290

PODCI Parent Reported (1/6 Domain Completed)a

84

91.3%

92

Upper Extremity

74

80.4%

92

Transfer Mobility

79

85.9%

92

Sports Physical Function

75

81.5%

92

Pain Comfort

83

90.2%

92

Happiness

70

76.1%

92

Global Function

70

76.1%

92

PODCI Parent Reported (6/6 Domains Completed)

64

69.6%

92

Proxy-Reported Anxiety Survey

56

86.2%

65

Proxy-Reported Depressive Symptoms Survey

54

83.1%

65

Proxy-Reported Fatigue Survey

52

80.0%

65

Proxy-Reported Pain Interference Survey

51

78.5%

65

Proxy-Reported Mobility Survey

52

80.0%

65

Proxy-Reported Peer Relationships Survey

52

80.0%

65

Adult Anxiety Survey

193

98.0%

197

Adult Depression Survey

192

97.5%

197

Adult Fatigue Survey

190

96.4%

197

Adult Pain Behavior Survey

190

96.4%

197

Adult Pain Interference Survey

188

95.4%

197

Adult Physical Function Survey

102

94.9%

197

Adult Physical Function with Mobility Aidb

85

Adult Satisfaction with Participation in Social Roles

186

94.4%

197

Adult Sleep Disturbance Survey

188

95.4%

197

Comment Form

252

86.9%

290

  1. a Does not include one 18 year old, and does not delineate between 2 and 4 and 5–17
  2. b Used in lieu of PROMIS® Adult CAT Physical Function instrument if the participant states the use of a mobility aid