Table 5 Diet prescription, assessment, and monitoring
n (%) | |
|---|---|
Factors considered “very important” in deciding which formula to prescribea | |
Nutrient composition of formula | 18 (95) |
Patient’s age | 17 (89) |
Preferences of the patient or family | 17 (89) |
Availability of the product | 15 (79) |
Price of the product | 4 (21) |
Severity of PAH deficiency | 4 (21) |
Approaches to assessing patient adherence to formula and diet prescriptiona | |
By patient’s/caregiver’s verbal report | 17 (89) |
Monitoring weight and height | 15 (79) |
By laboratory tests: | |
Phenylalanine | 16 (84) |
Pre-albumin | 13 (68) |
Tyrosine | 13 (68) |
Iron | 12 (63) |
B12 | 12 (63) |
Albumin | 5 (26) |
Checking how much formula was released by the dispensing authority | 12 (63) |
By analyzing written dietary questionnaires | 10 (53) |
Technique that is most successful in improving adherence to diet | |
Individualized PAH deficiency nutrition counseling | 11 (58%) |
Motivational interview techniques | 4 (21%) |
Reporting results of blood dots to patients | 4 (21%) |
Regular reminders for Phe blood dots | 0 |
Nutrients that are routinely monitored for “most” patients, based on diet recordsa | |
Dietary Phe intake | 19 (100%) |
Protein intake | 18 (95%) |
Calorie intake | 14 (74%) |
Mineral intake (any) | 12b (67%) |
Vitamin intake (any) | 12 (63%) |
Fat intake | 5c (29%) |
Other | 0 |
Components that are always/often included in routine clinical visit assessmentsa | |
Anthropometric measurements | 19 (100) |
Diet education | 17 (90) |
Dietary analysis | 17 (90) |