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Table 1 Sample Characteristics

From: Nutritional management of phenylalanine hydroxylase (PAH) deficiency in pediatric patients in Canada: a survey of dietitians’ current practices

Participant Characteristics Participant n (%)
Total number of years of practice in nutrition services (n = 19 dietitians)
  < 1 year 2 (11%)
 1–2 years 1 (5%)
 3–5 years 2 (11%)
 6–10 years 5 (26%)
 11–15 years 4 (21%)
  > 16 years 5 (26%)
Working full-time (n = 19 dietitians) 13 (68%)
Working part-time 6 (32%)
Time dedicated to care of PAH deficiency patients (n = 19 dietitians)
 All of my time 3 (16%)
 Less than all of my time but at least half of my time 7 (37%)
 Less than half of my time 9 (47%)
Centre Characteristics Centre n (%)
Number of PAH deficiency children actively followed at centre (n = 14 centres)
  < 10 1 (7%)
 10–20 2 (14%)
 20–40 8 (57%)
  > 40 3 (22%)
# PAH deficiency patients newly diagnosed each year (n = 14 centres)
 2 or fewer 12 (86%)
 3–5 2 (14%)
PAH deficiency patient population treated at the centre (n = 14 centres)
 Pediatric only (0–18 years) 3 (21%)
 Pediatric and adult combined 11 (79%)
Centre’s health care team composition (n = 14 centres)a
 Dietitian 14 (100%)
 Physician 13 (93%)
 Metabolic nurse 9 (64%)
 Social worker 7 (50%)
 Psychologist 6 (43%)
 Clinical biochemist 5 (36%)
 Genetic counselor 4 (29%)
 Nurse-practitioner 1 (7%)
Units used: mg/dLb (n = 14 centres) 2 (14%)b
Units used: μmol/L 12 (86%)
  1. aMultiple choice question: the percentages are expected to add up to more than 100%
  2. bOne of the two centers reporting using mg/dL, uses mg/dL in older patients and umol/L in younger patients