Skip to main content

Table 4 Number of patients with undiagnosed diseases in Japanese university hospitals who would be referred to IRUD

From: Survey on patients with undiagnosed diseases in Japan: potential patient numbers benefiting from Japan’s initiative on rare and undiagnosed diseases (IRUD)

Survey-2 Pediatrics/pediatric surgery Other departments
NUH PUH-main PUH-branch NUH PUH-main PUH-branch
Percentage of doctors needing IRUD 88.0% (66/75) 90.0% (36/40) 66.7% (22/33) 84.6% (237/280) 69.4% (170/245) 75.9% (126/166)
 Number of participating doctors (persons)a 75 40 33 280 245 166
 Number of doctors needing IRUD (persons) 66 36 22 237 170 126
 Number of patients who would be referred to IRUD per doctor needing IRUD (cases/person) 2.4 1.2 0.9 0.8 0.4 0.3
Total number of doctors in the relevant facilities in Japan (persons) 692 581 408 12,320 10,474 6955
Number of patients with undiagnosed diseases in Japan who would be referred to IRUD (cases) 1462 652 240 8338 3098 1797
  1. aIn Survery-2, all the participating doctors completed the survey
\