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Table 1 Characteristics of the survey response groups for Survey-1

From: Survey on patients with undiagnosed diseases in Japan: potential patient numbers benefiting from Japan’s initiative on rare and undiagnosed diseases (IRUD)

Survey-1 General Hospital (GH) Family Clinics (FC)
Pediatrics/pediatric surgery Others Pediatrics/pediatric surgery Others
No. of doctors who completed the survey 45   87   36   74  
Sex
 Male 39 86.7% 80 92.0% 33 91.7% 64 86.5%
 Female 6 13.3% 7 8.0% 3 8.3% 10 13.5%
Age
 20s 0 0.0% 1 1.1% 0 0.0% 0 0.0%
 30s 10 22.2% 12 13.8% 1 2.8% 5 6.8%
 40s 8 17.8% 33 37.9% 5 13.9% 23 31.1%
 50s 18 40.0% 35 40.2% 19 52.8% 34 45.9%
 60+ 9 20.0% 6 6.9% 11 30.6% 12 16.2%
Years since obtaining medical license
 Under 10 years 2 4.4% 3 3.4% 0 0.0% 2 2.7%
 10–14 8 17.8% 10 11.5% 0 0.0% 6 8.1%
 15–19 3 6.7% 20 23.0% 2 5.6% 8 10.8%
 20–24 9 20.0% 20 23.0% 7 19.4% 17 23.0%
 25–29 8 17.8% 23 26.4% 12 33.3% 19 25.7%
 30+ 15 33.3% 11 12.6% 15 41.7% 22 29.7%
No. of outpatients in the past month
 Under 100 cases 6 13.3% 15 17.2% 0 0.0% 2 2.7%
 100–199 cases 14 31.1% 15 17.2% 2 5.6% 6 8.1%
 200–299 cases 9 20.0% 24 27.6% 4 11.1% 4 5.4%
 300–399 cases 6 13.3% 10 11.5% 0 0.0% 7 9.5%
 400–599 cases 7 20.0% 15 17.2% 6 16.7% 17 23.0%
 600–799 cases 1 0.0% 2 2.3% 12 33.3% 13 17.6%
 800–999 cases 0 0.0% 4 4.6% 5 13.9% 9 12.2%
 1000+ cases 2 4.4% 2 2.3% 7 19.4% 16 21.6%
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