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Table 1 The number of patients, registration rate, percentage of pediatric patients, follow-up period and mean monthly Ig dose per country

From: The burden of common variable immunodeficiency disorders: a retrospective analysis of the European Society for Immunodeficiency (ESID) registry data

Country Number of patients in the registry Rate per 1 million of population Percentage of patients diagnosed before 18 y.o. Median (mean) follow-up period, years Total person years Percentage of patients with identified relative monthly Ig dose Mean (SD) monthly Ig dose, mg/kg
Austria 5 0.6 80.0% 9.0 (10.6) 53 80% 450 (327)
Belarus 2 0.2 100% 3.0 (3.0) 6 N.A. N.A.
Belgium 21 1.9 71.4% 6.0 (7.7) 162 61.9% 431 (110)
Czech Republic 90 8.6 30.0% 11.0 (12.1) 1093 80% 266 (146)
Egypt 4 0.5 100% 12.0 (10.3) 41 75% 300 (265)
Estonia 6 4.5 16.7% 6.5 (5.5) 33 100% 361 (70)
France 319 5.1 18.8% 6.0 (10.5) 3334 65.8% 538 (178)
Georgia 1 0.2 100% 5.0 (5.0) 5 100% 369 (−)
Germany 475 5.8 34.5% 7.0 (9.2) 4377 71.6% 385 (184)
Greece 34 3.1 76.5% 6.0 (9.3) 317 67.6% 544 (182)
Ireland 20 4.4 15.0% 15.5 (15.1) 302 50% 510 (68)
Italy 397 6.7 27.7% 7.0 (8.7) 3470 56.4% 405 (218)
Lithuania 4 1.3 0.0% 4.0 (6.5) 26 75% 380 (99)
Netherlands 183 11.0 38.3% 8.0 (9.9) 1803 56.3% 508 (214)
Poland 39 1.0 100% 5.0 (5.6) 218 100% 430 (142)
Russia 20 0.1 100.0% 6.0 (5.5) 110 90% 442 (146)
Serbia 11 1.5 81.8% 4.0 (5.5) 60 90.9% 400 (0)
Slovakia 13 2.4 84.6% 3.0 (5.5) 71 100% 392 (156)
Spain 258 5.5 24.4% 1.0 (3.4) 884 12.8% 412 (175)
Sweden 14 1.5 7.1% 8.0 (10.0) 140 78.6% 498 (221)
Switzerland 26 3.3 30.8% 7.0 (7.6) 197 69.2% 477 (287)
Turkey 75 1.0 76.0% 5.0 (5.6) 420 72% 472 (107)
U.K. 683 10.9 18.9% 7.0 (10.6) 7244 52.6% 528 (165)
Total/ overall 2700 3.9 30.5% 6.0 (9.0) 24,366 58.0% 454 (196)
  1. Ig immunoglobulin, N.A. data not available, y.o. years old