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Fig. 3 | Orphanet Journal of Rare Diseases

Fig. 3

From: The patient journey to diagnosis and treatment of autoinflammatory diseases

Fig. 3

Quotes from parents of children and drawing from patients with AIDs on emotional aspects. Emotional impact on the patients and their parents included: a After diagnosis, several questions remained unanswered from the parents’ perspective; b Parents had difficulty in explaining the disease to their children; c Patient’s perception of their mother’s explanation of HIDS: “Soldiers in your body fight imaginary germs;” d Drawings by patients with AIDs in response to how they perceive their disease; e Children with AIDs and their families experienced overwhelming isolation; f Parents remained hypervigilant about their child’s health. HIDS, hyperimmunoglobulin D syndrome; AIDs, autoinflammatory diseases

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