Fig. 3From: The patient journey to diagnosis and treatment of autoinflammatory diseasesQuotes from parents of children and drawing from patients with AIDs on emotional aspects. Emotional impact on the patients and their parents included: a After diagnosis, several questions remained unanswered from the parents’ perspective; b Parents had difficulty in explaining the disease to their children; c Patient’s perception of their mother’s explanation of HIDS: “Soldiers in your body fight imaginary germs;” d Drawings by patients with AIDs in response to how they perceive their disease; e Children with AIDs and their families experienced overwhelming isolation; f Parents remained hypervigilant about their child’s health. HIDS, hyperimmunoglobulin D syndrome; AIDs, autoinflammatory diseasesBack to article page