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Table 4 Discharges and LOS of inpatient healthcare amongst people with rare diseases in Hong Kong (2005–2016)

From: Healthcare burden of rare diseases in Hong Kong – adopting ORPHAcodes in ICD-10 based healthcare administrative datasets

Cohort Total admission over the study period Total hospital stay in days Mean (Median) LOS 25–75% quartile LOS
All discharges 546,673 3,635,917 6.7 (1) 1–4
Rare haematologic disease 135,503 418,635 3.1 (1) 1–149
Rare neoplastic disease 121,824 691,149 5.7 (1) 1–157
Rare developmental defect during embryogenesis disease 99,638 736,445 7.4 (1) 1–618
Rare neurologic disease 54,954 775,579 14.1 (3) 1–954
Rare systemic or rheumatologic disease 31,408 186,689 5.9 (1) 1–115
Rare endocrine disease 26,518 187,198 7.1 (1) 1–201
Rare cardiac disease 22,944 153,627 6.7 (3) 1–92
Rare inborn errors of metabolism 22,483 95,734 4.3 (1) 1–121
Rare otorhinolaryngologic disease 13,044 116,342 8.9 (2) 1–183
Rare respiratory disease 9345 284,592 30.5 (7) 1–290
Rare hepatic disease 6436 57,788 9.0 (4) 1–69
Rare gastroenterologic disease 5804 26,699 4.6 (2) 1–40
Rare eye disease 5709 141,814 24.8 (1) 1–195
Rare renal disease 5539 74,345 7.9 (2) 1–77
Rare skin disease 4811 67,255 14.0 (5) 1–95
Rare bone disease 2873 38,580 13.4 (2) 1–88
Rare immune disease 2219 5963 2.7 (1) 1–9
Rare gynecologic or obstetric disease 826 1156 1.4 (1) 1–2
Rare urogenital disease 259 713 2.8 (1) 1–2
Rare odontologic disease 33 46 1.4 (1) NAa
Rare abdominal surgical disease 6 27 4.5 (3) NAa
Rare circulatory system disease 4 26 6.5 (2) NAa
  1. LOS length of stay
  2. a NA due to limited observations for calculation