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Table 4 Discharges and LOS of inpatient healthcare amongst people with rare diseases in Hong Kong (2005–2016)

From: Healthcare burden of rare diseases in Hong Kong – adopting ORPHAcodes in ICD-10 based healthcare administrative datasets

Cohort

Total admission over the study period

Total hospital stay in days

Mean (Median) LOS

25–75% quartile LOS

All discharges

546,673

3,635,917

6.7 (1)

1–4

Rare haematologic disease

135,503

418,635

3.1 (1)

1–149

Rare neoplastic disease

121,824

691,149

5.7 (1)

1–157

Rare developmental defect during embryogenesis disease

99,638

736,445

7.4 (1)

1–618

Rare neurologic disease

54,954

775,579

14.1 (3)

1–954

Rare systemic or rheumatologic disease

31,408

186,689

5.9 (1)

1–115

Rare endocrine disease

26,518

187,198

7.1 (1)

1–201

Rare cardiac disease

22,944

153,627

6.7 (3)

1–92

Rare inborn errors of metabolism

22,483

95,734

4.3 (1)

1–121

Rare otorhinolaryngologic disease

13,044

116,342

8.9 (2)

1–183

Rare respiratory disease

9345

284,592

30.5 (7)

1–290

Rare hepatic disease

6436

57,788

9.0 (4)

1–69

Rare gastroenterologic disease

5804

26,699

4.6 (2)

1–40

Rare eye disease

5709

141,814

24.8 (1)

1–195

Rare renal disease

5539

74,345

7.9 (2)

1–77

Rare skin disease

4811

67,255

14.0 (5)

1–95

Rare bone disease

2873

38,580

13.4 (2)

1–88

Rare immune disease

2219

5963

2.7 (1)

1–9

Rare gynecologic or obstetric disease

826

1156

1.4 (1)

1–2

Rare urogenital disease

259

713

2.8 (1)

1–2

Rare odontologic disease

33

46

1.4 (1)

NAa

Rare abdominal surgical disease

6

27

4.5 (3)

NAa

Rare circulatory system disease

4

26

6.5 (2)

NAa

  1. LOS length of stay
  2. a NA due to limited observations for calculation