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Table 2 Patient 2: Resource utilization over a period of 18 years

From: Healthcare resource utilization in the management of hypophosphatasia in three patients displaying a spectrum of manifestations

Visit type

Reason/procedures

No. of events (unless otherwise specified)

Inpatient

Inpatient stays

43 days

Pediatric Ward

3 days

 Renal ultrasonography

1

 Skull radiograph

1

 Cranial CT

1

 DXA

1

 Ophthalmologist assessment

1

Pediatric Ward

3 days

 Inpatient admission for physiotherapy and occupational therapy and review by specialist

 

Neurosurgical Ward

5 days

 Craniovertebral decompression

1

 Chest radiograph

1

 Foramen magnum decompression

1

Neurosurgical Ward

14 days

 Cranial MRI

2

 Ventriculoperitoneal shunt insertion

1

 Lumbar puncture and lumbar drain insertion

1

 Cranial CT

1

Neurosurgical Ward

7 days

 Left ventriculoperitoneal shunt insertion, stealth guided

1

 Cranial CT

1

Neurosurgical Ward

6 days

 Left ventriculoperitoneal shunt insertion, image guided

1

Orthopedic Ward

5 days

 Intramedullary rod insertion for bilateral femur fractures

1

Day case

Day case procedures

3

 Dental surgery

2

 Teeth extraction

1

Outpatient procedure

Outpatient procedures

62

 Radiography

 

 − Limbs

18

 − Spine

12

 − Pelvis

1

 MRI

 

 − Cranial

14

 − Spine

2

 DXA

6

 Renal ultrasonography

6

 CT

 

 − Cranial

2

 − Abdomen

1

Outpatient specialist visit

Outpatient specialist visits

153

 Pediatric dentist

38

 Pediatric endocrinologist (first plus follow-up attendance)

32

 Neurosurgeon

27

 General pediatrician (first plus follow-up attendance)

19

 Pediatric ophthalmologist (first plus follow-up attendance)

10

 Occupational therapist

7

 Spinal surgeon

7

 Pediatric orthopedist (first plus follow-up attendance)

5

 Pain clinics

4

 Pediatric plastic surgeon (first plus follow-up attendance)

2

 Genetic specialist

1

 Pediatric craniofacial team (first attendance)

1

  1. CT computed tomography, DXA dual-energy x-ray absorptiometry, MRI magnetic resonance imaging