Table 1 Patient 1: Resource utilization during the first 2.5 years of life

Inpatient

Inpatient stays^a

725 days

NICU

73 days

 Mechanical ventilation

73 days

 Chest radiographs

16

 Endotracheal intubation

3

 Ultrasonography

 − Cranial

3

 − Abdominal

2

 − Renal tract

2

 EEG

1

 Tracheostomy

1

 Specialist visits

 − Otorhinolaryngologist

3

 − Genetics specialist

1

PICU

203 days

 Mechanical ventilation

203 days

 Tracheoscopy

3

 Hickman line–insertion and manipulation of line under general anesthesia

3

 Radiography

 − Chest

3

 − Forearm

2

 Cranial CT and MRI

2

 PORT-A-CATH insertion, central line removal

1

 Neurologic procedure: intracranial pressure monitor insertion

1

 Neurologic procedure: intracranial pressure monitor removal

1

 Thoracic CT with contrast

1

 Ultrasonography

 − Abdomen

1

 − Hips

1

 − Central veins

1

 − Doppler of neck and left leg

1

 Endotracheal intubation

1

 Specialist visits

 − Occupational therapist, 2 times/wk

57

 − Physiotherapist, 2 times/wk

57

 − Dietician

32

 − Pediatric immunologist

12

 − Neurologist

6

 − Ophthalmologist

5

 − Speech and language specialist

5

 − Otorhinolaryngologist

4

 − Cardiologist

3

 − Neurosurgeon

2

 − Pediatric surgeon

2

 − Genetics specialist

1

 − Microbiologist

1

 − Orthopedic surgeon

1

 − Pediatric radiologist

1

 − Pulmonologist

1

High-Dependency Unit, pediatric bed days

19 days

 Mechanical ventilation

19 days

 Renal tract ultrasonography

1

 Gastrostomy insertion

1

Long-term Treatment Ventilation Unit

430 days

 Mechanical ventilation

430 days

 Radiography

2

 Respiratory sleep study

2

 Cranial CT

1

 Renal tract ultrasonography

1

 Gastrostomy tube insertion

1

 Specialist visits

 − Pulmonologist

430

 − Occupational therapist, 2 times/wk

123

 − Physiotherapist, 2 times/wk

123

 − Dietician

21

 − Speech and language specialist

16

 − Neurosurgeon

4

 − Ophthalmologist

2

 − Otorhinolaryngologist

1

 − Pediatric surgeon

1

Outpatient procedure

Outpatient procedures

2

 Revision of gastrostomy tube

1

 Renal ultrasonography

1

Outpatient specialist visit

Outpatient specialist visits

32

 Pediatric endocrinologist visits (first visit and 3 follow-up attendance visits)

4

 Occupational therapist, 2 times/mo

14

 Physiotherapist, 2 times/mo

14

Community ventilation

Community ventilation

185 days

 Community long-term ventilation

185 days