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Table 2 Demographic data of children with metabolic diseases (n = 29)

From: Challenges of palliative care in children with inborn metabolic diseases

  Children with metabolic diseases
No. 29
Gender, male (%) 13 (44.8%)
Age at referral, median (range in years) 2.6 (0–24.1)
Age at death, median (range in years) 3.4 (0.1–26.7)
Duration of palliative care, median (range in days) 352 (3–2248)
Home visits, median (range in no.) 13 (1–80)
Deceased children 13 (44.8%)
Place of death, n (%)
 At home 4 (30.8%)
 In hospice 1 (7.7%)
 In hospital (not ICU) 1 (7.7%)
 ICU 7 (53.8%)