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Table 4 Ocular scoring in the Instrument for Scoring Clinical Outcome of Research for EB

From: A review of scoring systems for ocular involvement in chronic cutaneous bullous diseases

Eye redness Score Palpebral closure Score
Absent 0 Full closure 0
1–2 days/month 1 White to inferior conjunctiva 1
1–2 days/week 2 White to cornea 2
≥3 days/week 3 White to pupil 3
  1. Adapted from: Schwieger-Briel A, Chakkittakandiyil A, Lara-Corrales I, Aujla N, Lane AT, Lucky AW, et al. Instrument for scoring clinical outcome of research for epidermolysis bullosa: a consensus-generated clinical research tool. Pediatr Dermatol. 2015;32:41–52