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Table 4 Ocular scoring in the Instrument for Scoring Clinical Outcome of Research for EB

From: A review of scoring systems for ocular involvement in chronic cutaneous bullous diseases

Eye redness

Score

Palpebral closure

Score

Absent

0

Full closure

0

1–2 days/month

1

White to inferior conjunctiva

1

1–2 days/week

2

White to cornea

2

≥3 days/week

3

White to pupil

3

  1. Adapted from: Schwieger-Briel A, Chakkittakandiyil A, Lara-Corrales I, Aujla N, Lane AT, Lucky AW, et al. Instrument for scoring clinical outcome of research for epidermolysis bullosa: a consensus-generated clinical research tool. Pediatr Dermatol. 2015;32:41–52
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172