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Table 5 Consensus and dissensus between the P&P and the Professional groups on Quality of care and Organizational features at the centres

From: Lessons from patient and parent involvement (P&PI) in a quality improvement program in cystic fibrosis care in France

Categories: Quality of care, Patient centredness, Leadership Consensus amongst P&P No consensus amongst P&P
Consensus amongst Professionals Quality of Care: Quality of Care:
(++) Existence of improvement goals at the CFC and indicators to monitor them
(++) Existence of a therapeutic education program and professionals trained to deliver it
(++) Adequate multidisciplinary team, stable over time and possessing expertise in CF care
(++) Optimized clinic visit process allowing the patient to see all members of the core team and any referral professionals from various disciplines when necessary
(++) Optimized process of answering phone or email messages from patients and families
(++) Existence of an electronic patient record system at the centre
(NC,+) Periodic review of the records of the patients who came to the CFC, during the multidisciplinary staff meetings
(NC,+) Availability of care guidelines to all professionals
(NC,+) Organization of care providers in the patient community
Patient Centredness:
(++) Taking patient needs and requests into account
(++) Analyzing causes of complaints to prevent problems from recurring
Leadership:
(++) Driving the organization to meet patient needs and ensure safety of care
No consensus amongst Professionals Quality of Care Quality of Care:
(N,NC) Use of the EPR by the team during the staff meetings
(N,NC) Existence of a procedure to inform professionals on updates to guidelines
(NC,NC) Patient therapeutic education meeting patients’ needs
(NC,NC) Biology or Imaging Information contained in the EPR
Patient centredness:
Using data from the patients themselves to improve services