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Table 1 Number of Patients at the CFC engaged in PHARE-M by year

From: Lessons from patient and parent involvement (P&PI) in a quality improvement program in cystic fibrosis care in France

CF Program

Year PHARE-M

# Patients Data 2014

Pilot PHASE 2011–2013

PEDIATRIC

 Angers

2013

122

122

 Bordeaux

2016

148

 

 Clermont-Fd

2013

103

103

 CrĂ©teil

2015

109

 

 Dunkerque

2015

71

 

 Grenoble

2013

122

122

 Lille

2015

181

 

 Lyon

2012

290

290

 Nancy

2016

113

 

 Nantes

2012

104

104

 Paris R DebrĂ©

2012

168

168

 Rennes

2013

131

131

 Roscoff

2012

75

75

 Tours

2016

116

 

 Vannes-Lorient

2013

81

81

 Versailles

2012

65

65

ADULT

 Lyon

2012

313

313

 Nantes

2013

203

203

 Rennes

2013

101

101

 Montpellier

2015

197

 

 Reims

2012

131

131

 Roscoff

2013

75

75

TOTAL Patients in PHARE-M Group

3019

2084

% Patients recorded in Registry

47%

33%