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Table 1 Number of Patients at the CFC engaged in PHARE-M by year

From: Lessons from patient and parent involvement (P&PI) in a quality improvement program in cystic fibrosis care in France

CF Program Year PHARE-M # Patients Data 2014 Pilot PHASE 2011–2013
PEDIATRIC
 Angers 2013 122 122
 Bordeaux 2016 148  
 Clermont-Fd 2013 103 103
 Créteil 2015 109  
 Dunkerque 2015 71  
 Grenoble 2013 122 122
 Lille 2015 181  
 Lyon 2012 290 290
 Nancy 2016 113  
 Nantes 2012 104 104
 Paris R Debré 2012 168 168
 Rennes 2013 131 131
 Roscoff 2012 75 75
 Tours 2016 116  
 Vannes-Lorient 2013 81 81
 Versailles 2012 65 65
ADULT
 Lyon 2012 313 313
 Nantes 2013 203 203
 Rennes 2013 101 101
 Montpellier 2015 197  
 Reims 2012 131 131
 Roscoff 2013 75 75
TOTAL Patients in PHARE-M Group 3019 2084
% Patients recorded in Registry 47% 33%