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Table 7 Standardization of Data transmitted to the Registry with the use of CF Software

From: Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry

Patients <18 y.o. “Best VEMS L” “Best VEMS%” Data in the Registry Selection & Reference to calculate FEV1% Registry v/s Expected
Birth Gender FEV1 L FEV1% FEV1 L FEV1% FEV1 L FEV1% FEV1 L FEV1%
1 1997 M 4,16 108,00 4,11 110,00 4.16 108,00 CFC 1: Best FEV1 L and Zapletal Reference Software Gulper 0,00 0,00
2 2001 F 1,72 89,00 1,65 96,00 1.97 100,00 0,25 11,00
3 2005 F 1,58 109,00 1,53 113,00 1.58 111,00 0 2,00
4 2005 M 1,47 91,00 1,37 102,00 1.47 104,00 0 13,00
  2005 M 1,54 96,00 1,51 98,00 1.54 95,00 0 −1,00
5 2002 F 1,08 72,00 1,07 76,00 1.08 74,00 0 2,00
6 2007 F 1,00 104,00 0,99 107,00 1,00 105,00 0 1,00
35 2000 F 2,43 101,00 2,39 103,00 2.43 101,00 CFC 6: Selection of FEV1 L and Knudson Reference Software Mucodoméos 0 0,00
36 1999 F 2,48 91,00 2,27 92,00 2.48 91,00 0 0,00
  1999 F 2,64 86,00 2,41 87,00 2,64 86,00 0 0,00
37 2012 M 1,21 67 1,18 69 1.21 67 CFC 7: Selection of FEV1 L and Knudson Reference Software e-muco 0 0
38 2004 M 1,69 93 1,65 95 1.69 93 CFC 8: Selection of FEV1 L and Knudson Reference Software: e-muco 0 0
39 2007 F 0,92 89 0,72 93 0.92 89 0 0
40 2003 M 1,76 90 1,57 93 1.76 90 0 0
41 2005 M 1,43 90 1,25 93 1.43 90 0 0
42 2001 F 2,25 108 2,21 112 2.25 108 CFC 9: Selection of FEV1 L and Knudson Reference Software Mucodoméos 0 0
43 2004 F 1,52 107 1,51 114 1.52 108 0 0
  2004 F 1,52 98 1,5 106 1.52 99 0 0