From: Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry
33 Patients <18 y.o. | “Best VEMS L” | “Best VEMS%” | Data in the Registry | Selection & Reference to calculate FEV1% | △ Registry v/s Expected | ||||||
---|---|---|---|---|---|---|---|---|---|---|---|
n° | Year of Birth | Gender | FEV1 L | FEV1% | FEV1 L | FEV1% | FEV1 L | FEV1% | FEV1 L | FEV1% | |
1 | 2001 | F | 1,72 | 89,00 | 1,65 | 96,00 | 1.97 | 100,00 | CFC 1: Best FEV1 L and Zapletal Reference | 0,25 | 11,00 |
2 | 2005 | F | 1,58 | 109,00 | 1,53 | 113,00 | 1.58 | 111,00 | 0 | 2,00 | |
3 | 2005 | H | 1,47 | 91,00 | 1,37 | 102,00 | 1.47 | 104,00 | 0 | 13,00 | |
2005 | H | 1,54 | 96,00 | 1,51 | 98,00 | 1.54 | 95,00 | 0 | −1,00 | ||
4 | 2002 | F | 1,08 | 72,00 | 1,07 | 76,00 | 1.08 | 74,00 | 0 | 2,00 | |
5 | 2007 | F | 1,00 | 104,00 | 0,99 | 107,00 | 1,00 | 105,00 | 0 | 1,00 | |
6 | 1996 | F | 2,84 | 84,80 | 2,58 | 94,00 | 2.43 | 89,00 | CFC 2: Best FEV1%; CFC with Zappletal87; Annual Review in Pnumonology with Jaeger cabin & ECCS93 Quanjer Reference (adult); at Home with Spirodoc | −0,41 | 4,20 |
7 | 2001 | F | 2,50 | 93,00 | 2,32 | 96,00 | 2.41 | 93,00 | −0,09 | 0,00 | |
8 | 2001 | H | 2,12 | 102,70 | 1,93 | 110,00 | 1.93 | 110,00 | −0,19 | 7,30 | |
9 | 2002 | F | 1,89 | 105,00 | 1,66 | 114,00 | 1.66 | 114,00 | −0,23 | 9,00 | |
10 | 2004 | F | 1,33 | 77,00 | 1,20 | 81,00 | 1.2 | 81,00 | −0,13 | 4,00 | |
11 | 2004 | F | 1,55 | 93,00 | 1,45 | 104,00 | 1.55 | 93,00 | 0 | 0,00 | |
2004 | F | 1,53 | 83,70 | 1,39 | 84,00 | 1.39 | 84,00 | −0,14 | 0,30 | ||
12 | 1996 | H | 4,28 | 108,00 | 4,16 | 110,50 | . | 111,00 | CFC 3: Transmission of FEV1% only; ECCS93 Quanjer Reference in the spirometer at the CFC | −4,28 | 3,00 |
13 | 2001 | F | 1,19 | 83,20 | 1,17 | 83,50 | . | 83,00 | −1,19 | −0,20 | |
14 | 2001 | H | 1,87 | 87,20 | 1,86 | 89,50 | . | 87,00 | −1,87 | −0,20 | |
15 | 2003 | H | 1,58 | 87,60 | 1,55 | 88,80 | . | 89,00 | −1,58 | 1,40 | |
2003 | H | 1,58 | 81,70 | 1,52 | 82,90 | . | 82,00 | −1,58 | 0,30 | ||
16 | 2006 | F | 0,88 | 79,70 | 0,87 | 84,30 | . | 80,00 | −0,88 | 0,30 | |
17 | 2001 | H | 1,08 | 62,50 | 1,04 | 64,40 | . | 63,00 | −1,08 | 0,50 | |
18 | 2009 | H | 0,87 | 89,50 | 0,84 | 93,60 | 0.91 | 94,00 | CFC 4: Best FEV1 L after bronchodilator and Zapletal Reference | −0,04 | 4,50 |
19 | 2004 | H | 1,54 | 91,30 | 1,48 | 91,60 | 1.57 | 97,00 | −0,03 | 5,70 | |
20 | 2008 | F | 0,89 | 89,10 | 0,80 | 92,40 | 0.89 | 106,00 | 0 | 16,90 | |
21 | 1998 | F | 2,84 | 107,50 | 2,81 | 108,20 | 2.84 | 108,00 | 0 | 0,50 | |
22 | 2001 | F | 1,90 | 83,10 | 1,77 | 89,60 | 1.9 | 89,00 | 0 | 5,90 | |
2001 | F | 2,15 | 92,30 | 2,14 | 93,40 | 2.16 | 93,00 | 0,01 | 0,70 | ||
23 | 2007 | H | 0,98 | 91,30 | 0,96 | 101,40 | 0.96 | 101,00 | −0,02 | 9,70 | |
24 | 2001 | F | 1,36 | 77,50 | 1,31 | 79,40 | 1.38 | 84,00 | 0,02 | 6,50 | |
25 | 2002 | F | 1,51 | 86,50 | 1,46 | 88,70 | 1.52 | 92,00 | 0,01 | 5,50 | |
26 | 1998 | F | 1,76 | 74,10 | 1,70 | 74,30 | 1.85 | 78,00 | 0,11 | 3,90 | |
27 | 1998 | H | 3,23 | 81,00 | 3,10 | 81,90 | 3.33 | 88,00 | 0,1 | 7,00 | |
1998 | H | 3,69 | 84,30 | 3,50 | 85,00 | 3.94 | 90,00 | 0,25 | 5,70 | ||
28 | 2004 | H | 0,80 | 73,20 | 0,67 | 76,24 | 0.8 | 63.9 | CFC 5: Random Selection of Best FEV1 L or Best FEV1% maybe depending on the year and Zapletal Reference | 0 | −9,30 |
29 | 1994 | F | 3,19 | 93,40 | 2,94 | 94,20 | 3.18 | 102,00 | −0,01 | 8,60 | |
30 | 2001 | H | 2,02 | 82,90 | 1,82 | 87,30 | 1.82 | 87.3 | −0,2 | 4,40 | |
31 | 1997 | H | 2,94 | 100,20 | 2,90 | 100,60 | 2.9 | 100,00 | −0,04 | −0,20 | |
32 | 1999 | H | 2,24 | 112,10 | 2,21 | 120,50 | 2.21 | 120,00 | −0,03 | 7,90 | |
1999 | H | 2,92 | 115,00 | 2,43 | 119,20 | 2.69 | 126,00 | −0,27 | 11,00 | ||
33 | 2005 | F | 1,21 | 91,10 | 1,18 | 99,80 | 1.18 | 99.8 | 0,03 | 8,70 | |
Average | −0,36 | 4,25 | |||||||||
Median | −0,02 | 4,00 |