Table 1 Sociodemographic and rare disease characteristics among 1218 participants in the U.S
From: Health-related quality of life among adults with diverse rare disorders
Characteristic | Frequency | Percent | M (SD) | Range |
|---|---|---|---|---|
Age | 51.50 (14.56) | 18–89 | ||
Duration of RD symptoms in years | 18.84 (16.49) | 0–75 | ||
Years since RD diagnosis | 9.76 (11.46) | 0–70 | ||
Number of RDs perparticipant | ||||
1 | 1058 | 87% | ||
2 | 130 | 11% | ||
3 | 22 | 2% | ||
4 | 4 | <1% | ||
5 | 4 | <1% | ||
Gender | ||||
Female | 935 | 77% | ||
Male | 279 | 23% | ||
Other | 4 | <1% | ||
Income | ||||
under $10,000 | 58 | 5% | ||
$10,000–20,000 | 95 | 8% | ||
$20,001–30,000 | 118 | 10% | ||
$30,001–45,000 | 127 | 11% | ||
$45,001–60,000 | 161 | 14% | ||
$60,001–75,000 | 128 | 11% | ||
$75,001–90,000 | 107 | 9% | ||
$90,001 and above | 376 | 32% | ||
Race/ethnicity | ||||
American Indian orAlaska native | 11 | 1% | ||
Asian | 23 | 2% | ||
Black or African American | 13 | 1% | ||
Hispanic or Latino/a | 31 | 3% | ||
Native Hawaiian orPacific Islander | 2 | 6% | ||
White | 1149 | 94% | ||
Other | 31 | 3% | ||