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Table 1 Sociodemographic and rare disease characteristics among 1218 participants in the U.S

From: Health-related quality of life among adults with diverse rare disorders

Characteristic Frequency Percent M (SD) Range
Age    51.50 (14.56) 18–89
Duration of RD symptoms in years    18.84 (16.49) 0–75
Years since RD diagnosis    9.76 (11.46) 0–70
Number of RDs perparticipant
 1 1058 87%   
 2 130 11%   
 3 22 2%   
 4 4 <1%   
 5 4 <1%   
Gender
 Female 935 77%   
 Male 279 23%   
 Other 4 <1%   
Income
 under $10,000 58 5%   
 $10,000–20,000 95 8%   
 $20,001–30,000 118 10%   
 $30,001–45,000 127 11%   
 $45,001–60,000 161 14%   
 $60,001–75,000 128 11%   
 $75,001–90,000 107 9%   
 $90,001 and above 376 32%   
Race/ethnicity
 American Indian orAlaska native 11 1%   
 Asian 23 2%   
 Black or African American 13 1%   
 Hispanic or Latino/a 31 3%   
 Native Hawaiian orPacific Islander 2 6%   
 White 1149 94%   
 Other 31 3%   
  1. Percentages do not add to 100 due to rounding