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Fig. 1 | Orphanet Journal of Rare Diseases

Fig. 1

From: Health-related quality of life among adults with diverse rare disorders

Fig. 1

PROMIS mean scores for main sample of persons with RD and by RD category. Error bars represent 95% CI. Black lines indicate U.S. population mean, and gray lines indicate means for common chronic diseases. [6, 18] Higher numbers mean higher amounts of the measured construct, so high scores on anxiety, depression, fatigue, and pain interference indicate poor HRQL, while low scores on physical function and ability to participate in social roles and activities means poor HRQL. Main sample nā€‰=ā€‰1218; neurologic nā€‰=ā€‰480; neoplastic nā€‰=ā€‰221; systemic and rheumatological nā€‰=ā€‰66; developmental anomalies nā€‰=ā€‰58; and immune nā€‰=ā€‰56

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