Table 2 (abstract P7). Patient vs. caregiver survey responses. % (n) *
From: Abstracts from the First European Meeting for ATTR Amyloidosis for Doctors and Patients
What organs are involved besides the heart? + | ||||||
| Â | Kidney | Nerves | Liver | GI | Skin | Other |
Patient | 11% (8) | 50% (38) | 17% (13) | 26% (20) | 5% (4) | 43% (33) |
Caregiver | 28% (18) | 57% (36) | 27% (17) | 37% (23) | 16% (10) | 16% (10) |
What diagnostic procedures were done? + | ||||||
| Â | Heart biopsy | Fat pad biopsy | Rectal biopsy | Kidney biopsy | PYP/DPD | MRI |
Patient | 57% (43) | 53% (40) | 11% (8) | 3% (2) | 32% (24) | 68% (50) |
Caregiver | 43% (27) | 41% (26) | 10% (6) | 8% (5) | 8% (5) | 35% (22) |
What were the presenting symptoms? + | ||||||
| Â | Shortness of breath | Fatigue | Edema | Dizziness | Fainting | Neuropathy |
Patient | 54% (41) | 41% (31) | 21% (19) | 24% (18) | 21% (16) | 25% (19) |
Caregiver | 43% (27) | 30% (19) | 22% (14) | 21% (13) | 11% (7) | 32% (20) |
What type of physician made the diagnosis? | ||||||
| Â | Cardiologist | Hematologist | Internist | Neurologist | Nephrologist | Â |
Patient | 61% (46) | 7% (5) | 7% (5) | 13% (10) | 1% (1) | Â |
Caregiver | 40% (25) | 3% (2) | 5% (3) | 10% (6) | 3% (2) | Â |
What type of physician made a misdiagnosis? + | ||||||
| Â | Cardiologist | Hematologist | Internist | Neurologist | Nephrologist | GP |
Patient | 28% (21) | 3% (2) | 4% (3) | 7% (5) | 3% (2) | 8% (6) |
Caregiver | 29% (18) | 3% (2) | 14% (9) | 5% (3) | 5% (3) | 17% (11) |