From: Abstracts from the First European Meeting for ATTR Amyloidosis for Doctors and Patients
What organs are involved besides the heart? + | ||||||
 | Kidney | Nerves | Liver | GI | Skin |  |
hATTR | 18% (16) | 74% (65) | 25% (22) | 45% (40) | 11% (10) | Â |
wtTTR | 20% (10) | 18% (9) | 16% (8) | 6% (3) | 8% (4) | Â |
Number of organs involved besides the heart | ||||||
 | 0 | 1 | 2 | 3 | 4 | ≥5 |
hATTR | 11% (10) | 31% (27) | 35% (31) | 15% (13) | 6% (5) | 2% (2) |
wtTTR | 53% (27) | 30% (15) | 8% (4) | 8% (4) | 2% (1) | 0% (0) |
What diagnostic procedures were done? + | ||||||
 | Heart biopsy | Fat pad biopsy | Rectal biopsy | Kidney biopsy | PYP/DPD | MRI |
hATTR | 35% (31) | 59% (52) | 14% (12) | 7% (6) | 23% (20) | 50% (44) |
wtTTR | 76% (39) | 27% (14) | 4% (2) | 2% (1) | 18% (9) | 55% (28) |
How many different doctors were seen before diagnosis? | ||||||
 | 1 | 2 | 3 | 4 | 5 or more |  |
hATTR | 23% (20) | 13% (11) | 13% (11) | 16% (14) | 23% (20) | Â |
wtTTR | 18% (9) | 41% (21) | 16% (8) | 8% (4) | 8% (4) | Â |
What type of physician made the diagnosis? | ||||||
 | Cardiologist | Hematologist | Internist | Neurologist | Nephrologist |  |
hATTR | 35% (31) | 5% (4) | 6% (5) | 17% (15) | 2% (2) | Â |
wtTTR | 78% (40) | 6% (3) | 6% (3) | 2% (1) | 2% (1) | Â |
What type of doctor made a misdiagnosis?+ | ||||||
 | Cardiologist | Hematologist | Internist | Neurologist | Nephrologist | GP |
hATTR | 26% (23) | 3% (3) | 10% (9) | 5% (4) | 8% (7) | 16% (14) |
wtTTR | 31% (16) | 2% (1) | 6% (3) | 2% (1) | 2% (1) | 6% (3) |