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Table 1 (abstract P7). Hereditary ATTR (hATTR) vs. Wild-type TTR (wtATTR) survey responses, % (n)*

From: Abstracts from the First European Meeting for ATTR Amyloidosis for Doctors and Patients

What organs are involved besides the heart? +

 

Kidney

Nerves

Liver

GI

Skin

 

hATTR

18% (16)

74% (65)

25% (22)

45% (40)

11% (10)

 

wtTTR

20% (10)

18% (9)

16% (8)

6% (3)

8% (4)

 

Number of organs involved besides the heart

 

0

1

2

3

4

≥5

hATTR

11% (10)

31% (27)

35% (31)

15% (13)

6% (5)

2% (2)

wtTTR

53% (27)

30% (15)

8% (4)

8% (4)

2% (1)

0% (0)

What diagnostic procedures were done? +

 

Heart biopsy

Fat pad biopsy

Rectal biopsy

Kidney biopsy

PYP/DPD

MRI

hATTR

35% (31)

59% (52)

14% (12)

7% (6)

23% (20)

50% (44)

wtTTR

76% (39)

27% (14)

4% (2)

2% (1)

18% (9)

55% (28)

How many different doctors were seen before diagnosis?

 

1

2

3

4

5 or more

 

hATTR

23% (20)

13% (11)

13% (11)

16% (14)

23% (20)

 

wtTTR

18% (9)

41% (21)

16% (8)

8% (4)

8% (4)

 

What type of physician made the diagnosis?

 

Cardiologist

Hematologist

Internist

Neurologist

Nephrologist

 

hATTR

35% (31)

5% (4)

6% (5)

17% (15)

2% (2)

 

wtTTR

78% (40)

6% (3)

6% (3)

2% (1)

2% (1)

 

What type of doctor made a misdiagnosis?+

 

Cardiologist

Hematologist

Internist

Neurologist

Nephrologist

GP

hATTR

26% (23)

3% (3)

10% (9)

5% (4)

8% (7)

16% (14)

wtTTR

31% (16)

2% (1)

6% (3)

2% (1)

2% (1)

6% (3)

  1. *not all respondents answered all questions
  2. +respondents could check all answers that applied