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Table 1 (abstract P7). Hereditary ATTR (hATTR) vs. Wild-type TTR (wtATTR) survey responses, % (n)*

From: Abstracts from the First European Meeting for ATTR Amyloidosis for Doctors and Patients

What organs are involved besides the heart? +
  Kidney Nerves Liver GI Skin  
hATTR 18% (16) 74% (65) 25% (22) 45% (40) 11% (10)  
wtTTR 20% (10) 18% (9) 16% (8) 6% (3) 8% (4)  
Number of organs involved besides the heart
  0 1 2 3 4 ≥5
hATTR 11% (10) 31% (27) 35% (31) 15% (13) 6% (5) 2% (2)
wtTTR 53% (27) 30% (15) 8% (4) 8% (4) 2% (1) 0% (0)
What diagnostic procedures were done? +
  Heart biopsy Fat pad biopsy Rectal biopsy Kidney biopsy PYP/DPD MRI
hATTR 35% (31) 59% (52) 14% (12) 7% (6) 23% (20) 50% (44)
wtTTR 76% (39) 27% (14) 4% (2) 2% (1) 18% (9) 55% (28)
How many different doctors were seen before diagnosis?
  1 2 3 4 5 or more  
hATTR 23% (20) 13% (11) 13% (11) 16% (14) 23% (20)  
wtTTR 18% (9) 41% (21) 16% (8) 8% (4) 8% (4)  
What type of physician made the diagnosis?
  Cardiologist Hematologist Internist Neurologist Nephrologist  
hATTR 35% (31) 5% (4) 6% (5) 17% (15) 2% (2)  
wtTTR 78% (40) 6% (3) 6% (3) 2% (1) 2% (1)  
What type of doctor made a misdiagnosis?+
  Cardiologist Hematologist Internist Neurologist Nephrologist GP
hATTR 26% (23) 3% (3) 10% (9) 5% (4) 8% (7) 16% (14)
wtTTR 31% (16) 2% (1) 6% (3) 2% (1) 2% (1) 6% (3)
  1. *not all respondents answered all questions
  2. +respondents could check all answers that applied