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Table 2 FRDA Patient Scores on Questionnaires

From: Urinary, bowel and sexual symptoms in a cohort of patients with Friedreich’s ataxia

Questionnaire n = 59 Mean Score sd Range
Age of Onset   16.8 years 12.3 1–56
Duration of Ataxia   18.6 years 9 4–46
SARA   23 10 4.5–40
ADL   16 9 1–32
INAS   5 1.6 1–9
Questionnaire n* Mean Score sd Range
OAB 56 4.3 4 0–12
SF-Qual 38 1.2 0.9 0.1–3.6
NBD 59 3 5 0–26
ASEX 36 10 7 0–36
  1. FRDA – Friedreich’s Ataxia; SARA – Scale for the Assessment and Rating of Ataxia; ADL – Activities of Daily Living scale; OAB – Overactive Bladder score (subsection of Urinary Symptom Profile); SF-Qual – SF-Qualiveen quality of life score; NBD – Neurogenic Bowel Disease scale; ASEX – Arizona Sexual Experience scale. Higher scores indicate severe symptoms in each questionnaire
  2. *The total number of patients is calculated based on those who replied to the specific questions in the questionnaires and were included in the final analysis
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172