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Table 2 FRDA Patient Scores on Questionnaires

From: Urinary, bowel and sexual symptoms in a cohort of patients with Friedreich’s ataxia

Questionnaire

n = 59

Mean Score

sd

Range

Age of Onset

 

16.8 years

12.3

1–56

Duration of Ataxia

 

18.6 years

9

4–46

SARA

 

23

10

4.5–40

ADL

 

16

9

1–32

INAS

 

5

1.6

1–9

Questionnaire

n*

Mean Score

sd

Range

OAB

56

4.3

4

0–12

SF-Qual

38

1.2

0.9

0.1–3.6

NBD

59

3

5

0–26

ASEX

36

10

7

0–36

  1. FRDA – Friedreich’s Ataxia; SARA – Scale for the Assessment and Rating of Ataxia; ADL – Activities of Daily Living scale; OAB – Overactive Bladder score (subsection of Urinary Symptom Profile); SF-Qual – SF-Qualiveen quality of life score; NBD – Neurogenic Bowel Disease scale; ASEX – Arizona Sexual Experience scale. Higher scores indicate severe symptoms in each questionnaire
  2. *The total number of patients is calculated based on those who replied to the specific questions in the questionnaires and were included in the final analysis
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172