Table 2 Unmet needs highlighted by patients with lipoprotein lipase deficiency
Patient 1 | Patient 2 | Patient 3 |
|---|---|---|
• Medical education and support from HCPs • Ensure that medical records are passed to relevant onward care providers | • Medical education and support from HCPs • Early access to disease expert/specialist • Early access to effective and well-tolerated treatments • Advice and emotional support for patients and family members | • Dietary advice • Better understanding of pancreatitis • Prompt diagnosis • HCP support during long gaps between outpatient appointments • Emotional support • Information to aid patient and family disease knowledge/understanding |