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Table 2 Health-related quality of life (HRQOL) of patients and caregivers

From: Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

Patients All (n = 81) Type II (n = 60)
HRQOL (TTO social tariff score) 0.158 (0.44)a −0.012 (0.347)a
 Be confined to bed 19 (23.46%) 18 (30.0%)
 Unable to wash or dress by themselves 30 (37.04%) 26 (43.33%)
 Unable to perform their usual activities 13 (16.05%) 11 (18.33%)
 Surfer anxiety or mid depression 10 (12.35%) 5 (8.33%)
 Difficulties for usual activities or selfcare 40 (49.38%) 18 (30.0%)
HRQOL (VAS score) 54.09 (26.30)a 53.03 (25.03)a
Caregivers
HRQOL (TTO social tariff score) 0.484 (0.448)a 0.472 (0.475)a
HRQOL (VAS score) 69.1 (21.96)a 69.9 (20.03)a
  1. a Standard Deviation