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Table 2 Health-related quality of life (HRQOL) of patients and caregivers

From: Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

Patients

All (n = 81)

Type II (n = 60)

HRQOL (TTO social tariff score)

0.158 (0.44)a

−0.012 (0.347)a

 Be confined to bed

19 (23.46%)

18 (30.0%)

 Unable to wash or dress by themselves

30 (37.04%)

26 (43.33%)

 Unable to perform their usual activities

13 (16.05%)

11 (18.33%)

 Surfer anxiety or mid depression

10 (12.35%)

5 (8.33%)

 Difficulties for usual activities or selfcare

40 (49.38%)

18 (30.0%)

HRQOL (VAS score)

54.09 (26.30)a

53.03 (25.03)a

Caregivers

HRQOL (TTO social tariff score)

0.484 (0.448)a

0.472 (0.475)a

HRQOL (VAS score)

69.1 (21.96)a

69.9 (20.03)a

  1. a Standard Deviation