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Table 2 Patients characteristics

From: Prevalence of fibrodysplasia ossificans progressiva (FOP) in France: an estimate based on a record linkage of two national databases

 

Total

Number of FOP patients in CEMARA and/or PMSI

84

Gender

 MD*

1

 Male

44 (53.0%)

 Female

39 (47.0%)

Age on January 1, 2012 (years)

 

 MD

3

 10 years and less

18 (22.2%)

 11 to 20

20 (24.7%)

 21 to 30

13 (16.0%)

 31 to 40

17 (21.0%)

 41 to 50

5 (6.2%)

 51 to 60

5 (6.2%)

 60 and older

3 (3.7%)

Age on January 1, 2012 (years)

MD = 3

 Mean (standard deviation)

25.5 (16.2)

 Median / Min / Max

23.0 / 2.0 / 71.0

First symptoms

 MD

10

 At birth

2 (2.7%)

 After the birth

72 (97.3%)

Age at onset of symptoms (years)

MD = 12

 Mean (standard deviation)

7.1 (9.7)

 Median / Min / Max

5.0 / 0.1 / 56.0

Age at onset of symptoms (years)

 < =1 year old

16 (22.2%)

 1–2 years old

12 (16.7%)

 2–4 years old

7 (9.7%)

 4–6 years old

8 (11.1%)

 6–8 years old

8 (11.1%)

 8–17 years old

16 (22.2%)

 > =18 years old

5 (6.9%)

Age at diagnosis (years)

MD = 17

 Mean (standard deviation)

10.2 (12.9)

 Median / Min / Max

6.4 / 0.5 / 58.0

Age at diagnosis (years)

MD = 17

 < =1 year old

9 (13.4%)

 1–2 years old

9 (13.4%)

 2–4 years old

10 (14.9%)

 4–6 years old

5 (7.5%)

 6–8 years old

9 (13.4%)

 8–17 years old

15 (22.4%)

 > =18 years old

10 (14.9%)

  1. MD missing data