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Table 1 Result of the linkage of the 2 databases

From: Prevalence of fibrodysplasia ossificans progressiva (FOP) in France: an estimate based on a record linkage of two national databases

 

PMSI

  

Common patients

CEMARA

 

483 ICD-10 coded patients

 

83 Orphacoded patients

Validation/correction method

False positives

Possible FOP

True positives

 

True positives

False positives

Medical expert

410

32

41

41

83

0

Healthcare local center review of possible FOP cases

7

24

1

   

Classification of 24 possible FOP cases

22

0

2

   

TOTAL before capture-recapture

439

0

44

41

83

0

Estimation of missing cases outside the two datasets (Chao)

3

     

TOTAL adjusted FOP cases

89