Table 6 By centre (MAFACE, specializing in orofacial diseases and MALO, specializing in ENT), distribution of patients residing outside Paris Region and coming to Paris for treatment per the objective of their consultation
Center | Disease | Diagnosis % (n) | Treatment % (n) | Follow-up % (n) | Medical act %(n) | Out-of Paris Global % (n) | Global CENTER (n) |
|---|---|---|---|---|---|---|---|
MAFACE | Goldenhar | 38.0 (27) | 52.6 (161) | 52.6 (300) | 60.9 (42) | 51.2 (530) | 1016 |
Moebius | 60.9 (56) | 49.5 (101) | 54.4 (241) | 26.7 (4) | 53.3 (402) | 754 | |
Treacher-Collins | 75.9 (22) | 80.3 (163) | 78.2 (248) | 71.6 (48) | 78.1 (481) | 616 | |
Van der Woude Syndrome | 20.0 (4) | 30.1 (25) | 31.7 (97) | 34.3 (12) | 31.1 (138) | 444 | |
Cleft lip with or without cleft palate/Cleft lip and alveolus/cleft palate | 25.6 (312) | 29.7 (1669) | 28.5 (5297) | 31.0 (514) | 28.8 (7792) | 27,054 | |
MALO | BOR syndrome | 66.6 (2) | 66.7 (4) | 0 (0) | 0 (0) | 46.1 (6) | 13 |
CHARGE Syndrome | 33.3 (1) | 80.0 (4) | 20 (1) | 0 (0) | 46.1 (6) | 13 | |
Weissenbacher-Zweymuller syndrome | 0 (0) | 25.0 (3) | 29.4 (5) | 0 (0) | 27.6 (8) | 29 | |
Cysts and fistulae of the face and oral cavity/Familial thyroglossal duct cyst/Congenital laryngeal cyst/Nasolacrimal duct cyst | 66.7 (2) | 0. (0) | (0) 0 | 0 (0) | 22.2 (2) | 9 |