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Table 7 Social care expenses; services

From: The burden, epidemiology, costs and treatment for Duchenne muscular dystrophy: an evidence review

Country: Subgroup: Cost year: Currency

Informal carer time/Care help

Home help, personal assistants, nannies, and transportation services.

Food, travel, diet etc.

Housing

Work/school assistance

Social care cost

First author & publication year

Mean

LCI;UCI

Mean

LCI;UCI

Germany: DMD Age 9 to 17:2012:US dollar ($)

18530

16440;20580

8920

6890;12400

NR

NR

NR

NR

Landfeldt(a), 2014 [58]

Italy: DMD Age 8 to 17:2013:US dollar ($)

13160

11270;15280

2740

1630;5380

NR

NR

NR

NR

UK: DMD Age 8 to 17:2014:US dollar ($)

14340

13030;15990

19250

13240;28670

NR

NR

NR

NR

US: DMD Age 9 to 17:2015:US dollar ($)

13370

12060;14930

7610

6210;10260

NR

NR

NR

NR

US:US DMD All Age:2010:US dollar ($)

NR

NR

3189a

NR

6605

NR

NR

12939

Larkindale, 2014 [32]

Germany: DMD Age 1 to 42:2013:Euro (€)

21279

NR

NR

NR

NR

7102

883

30884

Schreiber-Katz, 2014 [23]

Germany: Stage 1 DMD Age 1 to 14:2014:Euro (€)

8303

NR

NR

NR

NR

2881

NR

11646

Germany: Stage 2 DMD Age 3 to 14:2015:Euro (€)

8029

NR

NR

NR

NR

83

931

10684

Germany: Stage 3 DMD Age 10 to 23:2016:Euro (€)

19532

NR

NR

NR

NR

3303

1980

29238

Germany: Stage 4 DMD Age 1 to 31:2017:Euro (€)

31490

NR

NR

NR

NR

14359

1481

49834

Germany: Stage 5 DMD Age 11 to 40:2018:Euro (€)

44443

NR

NR

NR

NR

17112

NR

62980

  1. aDescribed as care help