From: The burden, epidemiology, costs and treatment for Duchenne muscular dystrophy: an evidence review
First author & publication year | Name of subgroup | Country | Number of cases | Median survival | Number of deaths | % overall mortality |
---|---|---|---|---|---|---|
Kieny, 2013 [17] | Born 1955–1994 | France | 119 | NR | 55 | 27.6 |
Born 1955–1969 | 43 | 25.77 years | NR | NR | ||
Born 1970–1994 | 76 | 40.95 years | NR | NR | ||
Passamano, 2012 [18] | Born 1961–1990 | Italy | 516 | NR | NR | NR |
Born 1961–1970 (age 25) | NR | NR | NR | 86.5 | ||
Born 1971–1980 (age 25) | NR | NR | NR | 69.4 | ||
Born 1981–1990 (age 25) | NR | NR | NR | 50.8 | ||
Born 1961–1970 (age 20) | NR | NR | NR | 76.7 | ||
Born 1971–1980 (age 20) | NR | NR | NR | 46 | ||
Born 1981–1990 (age 20) | NR | NR | NR | 40.2 | ||
Rall, 2012 [19] | Born 1970–1980 | Germany | 67 | Median survival was 24 years (21.3–26.7 CI) for patients diagnosed with molecular testing (n = 67). The probability of reaching 24 years was 67% for subjects with DMD diagnosed clinically only. | NR | NR |