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Table 5 Sensitivity, Specificity, and Positive Predictive Value of passive dataset after linking to active dataset

From: Capture-recapture methodology to study rare conditions using surveillance data for fragile X syndrome and muscular dystrophy

Population

Sensitivity

Specificity

Positive Predictive Value

Muscular Dystrophy

 Cases with at least one in-patient ICD-9-CM code or at least two outpatient ICD-9-CM codes given in a facility in target counties where at least one of the diagnoses was made by a neurologist, geneticist, or developmental pediatrician

20.1%

96.5%

56.6%

Fragile X Syndrome

 Cases with at least one in-patient ICD-9-CM code or at least two outpatient ICD-9-CM codes given in a facility in target counties

39.7%

75.0%

75.7%