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Table 5 Sensitivity, Specificity, and Positive Predictive Value of passive dataset after linking to active dataset

From: Capture-recapture methodology to study rare conditions using surveillance data for fragile X syndrome and muscular dystrophy

Population Sensitivity Specificity Positive Predictive Value
Muscular Dystrophy
 Cases with at least one in-patient ICD-9-CM code or at least two outpatient ICD-9-CM codes given in a facility in target counties where at least one of the diagnoses was made by a neurologist, geneticist, or developmental pediatrician 20.1% 96.5% 56.6%
Fragile X Syndrome
 Cases with at least one in-patient ICD-9-CM code or at least two outpatient ICD-9-CM codes given in a facility in target counties 39.7% 75.0% 75.7%